When Kenny Price first learned that his newborn son Charlie had a giant congenital melanocytic nevus (CMN), the future felt uncertain. Faced with fear, misinformation, and a rare diagnosis few understood, Kenny and his family began a journey that would span 22 years. Through surgeries, faith, friendship, and unwavering determination, he discovered that true strength isn't about having all the answers but showing up every day for the people you love.

Growing up with Congenital Melanocytic Nevi (CMN), Khalid Bethea spent years battling insecurity, isolation, and fear of judgment. Through family support, life experience, and learning to embrace himself fully, he discovered that strength is not about hiding differences -it is about living authentically. In this Men & CMN feature, Khalid shares his journey toward confidence, vulnerability, and finding value far beyond appearance.

When Chris Skinner’s daughter Sophia was born with Congenital Melanocytic Nevi (CMN), fear and uncertainty quickly became part of their family’s story. But over time, Chris learned that fatherhood was not about having all the answers- it was about showing up. Through surgeries, stares, faith, and hard conversations, he has learned to help Sophia live confidently, love deeply, and move through life without letting CMN define her.

For rare disease families, conference is more than an event — it can become the beginning of lifelong friendship, understanding, and support. This heartfelt story follows two families who met at their very first Nevus Outreach Conference when their sons, both diagnosed with CMN and NCM, were just infants. Sixteen years later, their connection continues to remind us that community can change the rare disease journey forever.

Growing up with a visible nevus wasn’t always easy, but it taught me something powerful: I can’t control how others react, only how I respond. Choosing kindness over anger helped me find confidence in my own skin. What once felt like a challenge has become one of my greatest gifts—shaping me into someone who leads with empathy, strength, and self-acceptance.

Jonathan has lived with a nevus for nearly five decades, navigating childhood surgeries, public reactions, and ongoing treatments without the promise of a cure. His story is one of endurance, vulnerability, and remarkable strength. By sharing his journey, Jonathan offers insight, understanding, and hope...reminding others that life with a visible difference is not defined by appearances, but by resilience.

Running for Levi: Mike’s Boston Marathon Journey follows a father taking on 26.2 miles with purpose beyond the finish line. What began as a personal challenge became a way to honor his son Levi and give back to the CMN community through Nevus Outreach. Each mile Mike runs represents resilience, hope, and the power of showing up for family and community.

Born with a giant congenital melanocytic nevus, Josefina faces the world with confidence, joy, and courage. Supported by love, family, and community, her story reminds us that true beauty is found in authenticity, and that every visible difference carries a powerful story of strength.

Born at just 27 weeks, baby Luiz entered the world fighting -and he has continued to inspire everyone around him ever since. Alongside the challenges of prematurity, Luiz was diagnosed with Giant Congenital Melanocytic Nevus (GCMN), a rare condition affecting roughly one in every 500,000 births. In this heartfelt blog, Luiz’s mother, Milena Servian, shares the emotional early days of uncertainty, courage, and overwhelming love.

When NICU nurse Laura welcomed her daughter Holland, she never expected a diagnosis she’d never heard of Congenital Melanocytic Nevus (CMN). Late one night, searching for answers, she found Nevus Outreach and with it, hope, understanding, and a community that changed everything. Read how one connection transformed her family’s journey and inspired her to help others find the same support.

Born in Los Angeles with CMN, Valentina endured seven cosmetic surgeries her doctors said were “necessary.” Looking back, she knows they weren’t. After losing her mother to breast cancer, her sisters became her greatest support. Now 26, Valentina is a photographer and filmmaker in the Pacific Northwest. Finding Nevus Outreach felt like surfacing for air—she’s no longer alone. Her CMN, once a source of fear, has become her superpower of courage and resilience.

When Caitlyn Neuendorf welcomed her daughter Reece, her instincts told her something wasn’t right. What began as reassurance from doctors quickly turned into fear as specialists diagnosed Reece with Giant Congenital Melanocytic Nevi (GCMN), a rare condition affecting 1 in 500,000 births. Their journey reflects the isolation, anxiety, and resilience families face—and the hope found through connection and community.

Back-to-school season brings fresh starts—and for families impacted by congenital melanocytic nevi (CMN), it can bring extra questions, too. Whether it’s helping your child prepare for curious classmates or ensuring teachers understand their needs, Nevus Outreach has your back. From expert-led videos to customizable student letters, we’re here to help your family start the school year informed, confident, and supported. Let’s face the year ahead—together.

Aussie families united for the first-ever nevus gathering! 🎉 Partnering with Rally for Rare, Nevus Outreach helped launch Nevus Australasia Foundation. Over 40 attendees, including 10+ nevus owners, connected in a heartwarming picnic. Inspired by his US experience, host Steven Bouris is building vital support. The Foundation will empower families & foster community. ❤️

The Rally for Rare event in Pennsylvania was nothing short of incredible. From the moment guests walked into our private space, it felt more like a family reunion than a first-time gathering.

From hiding to shining one woman's journey with CMN and why the community needs each other.

As the attendees talked, it became clear just how powerful these small gatherings can be. Stories were exchanged, support was offered, and a strong sense of understanding filled the room.

The Nevus Outreach Rally for Rare New York, was filled with warmth, laughter, and an incredible sense of community.

The recent Nevus Outreach rally in Denver radiated warmth, connection, and a powerful sense of community. For many families, including first-time attendees, the event offered a unique opportunity to connect in person with others who share similar experiences.

The Rally for Rare event in Boston was just the beginning. I look forward to many more gatherings, conversations, and moments of support that reinforce what I have learned on this journey: We are never alone, and together, we can make a difference.