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Amplifying Our Voices: Why Collective Advocacy is Crucial for Rare Skin Diseases
Your voice matters! This May, I joined fellow moms at Coalition of Skin Diseases' (CSD) Hill Day, representing Nevus Outreach. We shared our families' rare disease journeys with lawmakers, advocating for crucial policies like the Safe Step Act. Our personal stories amplified the need for change, proving collective action truly impacts lives.

Kimberly Phelps
Jul 23 min read
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Big News for Our Community: WHO Takes Landmark Step Towards Recognizing All Skin Diseases!
WHO backs WHA Skin Diseases Resolution! 🎉 Landmark step for global skin health, impacting millions. Nevus Outreach community, your voice is crucial! Contact your Minister of Health & use GlobalSkin resources to urge support before May 2025 WHA. Let's make history!

Nevus Outreach
May 283 min read
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Building Momentum Across Borders: Highlights from Naevus Global and GlobalSkin Conferences
CMN Patient Representatives together at the Naevus Global Conference In April 2025, representatives from CMN organizations across nine...

Whitney Casal
May 263 min read
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