Jonathan has lived with a nevus for nearly five decades, navigating childhood surgeries, public reactions, and ongoing treatments without the promise of a cure. His story is one of endurance, vulnerability, and remarkable strength. By sharing his journey, Jonathan offers insight, understanding, and hope...reminding others that life with a visible difference is not defined by appearances, but by resilience.

Running for Levi: Mike’s Boston Marathon Journey follows a father taking on 26.2 miles with purpose beyond the finish line. What began as a personal challenge became a way to honor his son Levi and give back to the CMN community through Nevus Outreach. Each mile Mike runs represents resilience, hope, and the power of showing up for family and community.

Your voice matters! This May, I joined fellow moms at Coalition of Skin Diseases' (CSD) Hill Day, representing Nevus Outreach. We shared our families' rare disease journeys with lawmakers, advocating for crucial policies like the Safe Step Act. Our personal stories amplified the need for change, proving collective action truly impacts lives.

WHO backs WHA Skin Diseases Resolution! 🎉 Landmark step for global skin health, impacting millions. Nevus Outreach community, your voice is crucial! Contact your Minister of Health & use GlobalSkin resources to urge support before May 2025 WHA. Let's make history!

CMN Patient Representatives together at the Naevus Global Conference In April 2025, representatives from CMN organizations across nine...