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Luiz: Our Little Warrior

Updated: Nov 26

By Milena Servian


A baby boy is sitting on top of a suitcase, wearing a straw hat, checkered shirt, a tie, and a sweet smile. There are large letters to the right that say "Meet Luiz" in front of a background of lines in orange, yellow, light blue, navy blue and white. Nevus Outreach logo is present in the left bottom corner


A woman holds her 27 week old baby in a NICU setting. She has a blue jacket on, which is wrapped around the infant to keep him warm. The baby has medical tubes taped to their mouth and the mother is looking down at him, wearing a mask for his protection.

My son Luiz came into the world prematurely, at just 27 weeks of gestation. From that moment on, he became a true warrior. 

Apart from being born prematurely, we soon learned that Luis was also born with a unique diagnosis: Giant Congenital Melanocytic Nevus (GCMN), which we were told occurs in about one in every 500,000 births.


From the moment he arrived, his presence filled our hearts with both uncertainty and overwhelming love.




Those early days were filled with challenges — surrounded by medical care, constant monitoring, and tireless hope — but also with small victories that reminded us of his incredible strength. Each breath, each movement, and each day of growth became a reason to celebrate.

A baby boy with GCMN is laying down on his back, proudly displaying the GCMN that stretches from his back to his stomach. He has several quarter sized nevi on his legs, and several pin sized nevi scattered on his legs and arms. He smiles sweetly at the camera, with a full head of brown short hair.

His nevus, which covers much of his back and chest, is not just a birthmark. It is part of his identity-a reminder that beauty exists in all forms, and that every difference tells a special story. Through him, we have learned to see uniqueness as something powerful.



A baby boy in a crochet yellow and brown costume, with a similarity to a lion, with a photography backdrop of what appears to be water and vegetation. His GCMN can be seen on his stomach, as well as several smaller nevi scattered on his arms and legs. He's looking up to the left with a sense of wonder in his eyes.

Today, Luiz is a strong, smiling, and full-of-life baby. His laughter brings light to those around him, and his joyful spirit is a reflection of the love and courage that have carried him this far.



My wish is to tell his story and help more people around the world see the nevus not as a defect, but as a mark of love and strength. I hope that Luiz’s journey will inspire others to embrace what makes them different and to celebrate the beauty in every story. Luiz is my miracle, my inspiration, and my source of pride.
A baby with GCMN is pictured with the feet out front, in focus. There are several nevi scattered on his feet, with one resembling the shape of a heart. Out of focus, is the trunk of the baby, which has GCMN wrapped around the baby's stomach from under his armpits, over his chest, but not quite meeting in the middle.

 

💡 Want to connect with other CMN families, find trusted resources, or support research? Visit Nevus Outreach to learn more, join our community, share your story, or make a gift today.

1 Comment

Glenn Cooley
Nov 27

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