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The future of congenital melanocytic nevi research is in your hands

No one understands congenital melanocytic nevi or associated disorders like those who live it every day. Share your expertise via the Registry to transform the search valuable insights and better treatments.

You have the power to fuel research discoveries with you joint NOOR. Create an online profile, answer survey questions, and update your information over time to tell the story of how this condition has affected your life. When added to the information shared by other patients, your survey answers will help us better understand this condition. The Registry also allows Nevus Outreach to show doctors and researchers the strength of this community and spur interest in treatment developments.

9 Facts About These Future
Vital Surveys

  1. Collection of short surveys asking about your life and medical history.

  2. The average time to complete all surveys in one sitting is 45 minutes.

  3. You'll be able to give consent about how your de-identified answers are shared.

  4. NOOR follows strict government guidelines to ensure your information is protected.

  5. An Expert Advisory Board must approve researchers to access data.

  6. Participation is free and voluntary, and you can withdraw at any time

  7. Any adult or caregiver (of a child) diagnosed with a nevus can participate.

  8. Most comprehensive data collection in one secure location.

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