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What is a Donor-advised fund?
Join Nevus Outreach for DAF Day: Amplify Your Impact on October 10! Nevus Outreach is thrilled to announce our participation in the...

Nevus Outreach
Oct 32 min read


My Hidden Super Power: Sharing My CMN Journey So Far
Born in Los Angeles with CMN, Valentina endured seven cosmetic surgeries her doctors said were “necessary.” Looking back, she knows they weren’t. After losing her mother to breast cancer, her sisters became her greatest support. Now 26, Valentina is a photographer and filmmaker in the Pacific Northwest. Finding Nevus Outreach felt like surfacing for air—she’s no longer alone. Her CMN, once a source of fear, has become her superpower of courage and resilience.
Hannah Diamond
Sep 123 min read


On Solid Ground: How Mom Caitlyn Found Her Footing After Diagnosis
When Caitlyn Neuendorf welcomed her daughter Reece, her instincts told her something wasn’t right. What began as reassurance from doctors quickly turned into fear as specialists diagnosed Reece with Giant Congenital Melanocytic Nevi (GCMN), a rare condition affecting 1 in 500,000 births. Their journey reflects the isolation, anxiety, and resilience families face—and the hope found through connection and community.
Hannah Diamond
Aug 293 min read


Back to School with Confidence: Tips & Resources for Nevus Families
Back-to-school season brings fresh starts—and for families impacted by congenital melanocytic nevi (CMN), it can bring extra questions, too. Whether it’s helping your child prepare for curious classmates or ensuring teachers understand their needs, Nevus Outreach has your back. From expert-led videos to customizable student letters, we’re here to help your family start the school year informed, confident, and supported. Let’s face the year ahead—together.

Nevus Outreach
Aug 82 min read


Sole Connections: From One Foot Nevus to Another
While preparing for a Nevus Neighbor event, we rediscovered Stacey’s 2011 post about living with a foot GCMN—and connected her with Kayla, a mom seeking support for her daughter’s similar condition. That message sparked a powerful connection rooted in shared experience, empathy, and hope. It’s moments like these that show how Nevus Outreach empowers and unites, ensuring no one walks this journey alone

Kimberly Phelps
Jul 213 min read


Amplifying Our Voices: Why Collective Advocacy is Crucial for Rare Skin Diseases
Your voice matters! This May, I joined fellow moms at Coalition of Skin Diseases' (CSD) Hill Day, representing Nevus Outreach. We shared our families' rare disease journeys with lawmakers, advocating for crucial policies like the Safe Step Act. Our personal stories amplified the need for change, proving collective action truly impacts lives.

Kimberly Phelps
Jul 23 min read


Katie and David Lane can't wait to welcome you to Orlando!
Learn more about our nevus conference host family as you prepare to join us in Orlando 2026.
Hannah Diamond
Jun 194 min read


Stronger Together: The Rise of a Nevus Community in Australia
Aussie families united for the first-ever nevus gathering! 🎉 Partnering with Rally for Rare, Nevus Outreach helped launch Nevus Australasia Foundation. Over 40 attendees, including 10+ nevus owners, connected in a heartwarming picnic. Inspired by his US experience, host Steven Bouris is building vital support. The Foundation will empower families & foster community. ❤️

Nevus Outreach
May 292 min read


Big News for Our Community: WHO Takes Landmark Step Towards Recognizing All Skin Diseases!
WHO backs WHA Skin Diseases Resolution! 🎉 Landmark step for global skin health, impacting millions. Nevus Outreach community, your voice is crucial! Contact your Minister of Health & use GlobalSkin resources to urge support before May 2025 WHA. Let's make history!

Nevus Outreach
May 283 min read


Building Momentum Across Borders: Highlights from Naevus Global and GlobalSkin Conferences
CMN Patient Representatives together at the Naevus Global Conference In April 2025, representatives from CMN organizations across nine...

Whitney Casal
May 263 min read


Gather ‘Round for Campfire Chats: Nevus Outreach’s Summer Live Series is Here!
Summer just got a whole lot warmer — Campfire Chats are here!
Join Nevus Outreach all summer long for our new Live Series, featuring powerful conversations, expert insights, and real stories from the CMN community. From mental health to medical research, advocacy to connection — there’s something for everyone.

Nevus Outreach
May 233 min read


Pennsylvania's Rally for Rare: Where Community Feels Like Family
The Rally for Rare event in Pennsylvania was nothing short of incredible. From the moment guests walked into our private space, it felt more like a family reunion than a first-time gathering.

Nevus Outreach
May 221 min read


From Hiding to Shining - my journey with CMN and why we need each other
From hiding to shining one woman's journey with CMN and why the community needs each other.

NANÉE
May 142 min read


Heartwarming Connections: The Tulsa Nevus Outreach Rally
As the attendees talked, it became clear just how powerful these small gatherings can be. Stories were exchanged, support was offered, and a strong sense of understanding filled the room.

Nevus Outreach
May 101 min read


Stronger Together: Building a Nevus Community One Story at a Time
The Nevus Outreach Rally for Rare New York, was filled with warmth, laughter, and an incredible sense of community.

Nevus Outreach
May 62 min read


More Than a Denver Meetup: Finding Connection in the Nevus Community
The recent Nevus Outreach rally in Denver radiated warmth, connection, and a powerful sense of community. For many families, including first-time attendees, the event offered a unique opportunity to connect in person with others who share similar experiences.

Nevus Outreach
May 21 min read


A Full Circle Moment: Hosting My First Rally for Rare Event in Boston
The Rally for Rare event in Boston was just the beginning. I look forward to many more gatherings, conversations, and moments of support that reinforce what I have learned on this journey: We are never alone, and together, we can make a difference.

Danielle Bestoso
Apr 293 min read


Together in the Rare: Honoring Allison in San Antonio, TX
Rare Disease Day rally bloomed with connection. Though our conditions are rare, isolation vanished as we gathered, a small group united by something deep. Stories, hugs, laughter, tears – we created space to be seen. At "Tons of Fun," strangers found kinship, honoring Allison's joyful, fierce spirit. Though she's gone, her strength lives on, reminding us that "rare" doesn't mean alone.

Nevus Outreach
Apr 262 min read


Policy & Progress: What’s at Stake for the Nevus Community — And How You Can Take Action
Nevus policy impacts research, care, life quality. This blog breaks down legislation, progress, and how YOU can advocate. Your voice shapes the future. Stay informed, get involved, drive progress.

Nevus Outreach
Apr 235 min read


Reflecting on Connection and Community: Rally for Rare Orlando
Small but mighty! Nevus Outreach's Orlando Rally for Rare on 3/8 brought heartfelt connections & lifelong support insights.

Danielle Bestoso
Apr 82 min read
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