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My Hidden Super Power: Sharing My CMN Journey So Far
Born in Los Angeles with CMN, Valentina endured seven cosmetic surgeries her doctors said were “necessary.” Looking back, she knows they weren’t. After losing her mother to breast cancer, her sisters became her greatest support. Now 26, Valentina is a photographer and filmmaker in the Pacific Northwest. Finding Nevus Outreach felt like surfacing for air—she’s no longer alone. Her CMN, once a source of fear, has become her superpower of courage and resilience.
Hannah Diamond
Sep 123 min read


On Solid Ground: How Mom Caitlyn Found Her Footing After Diagnosis
When Caitlyn Neuendorf welcomed her daughter Reece, her instincts told her something wasn’t right. What began as reassurance from doctors quickly turned into fear as specialists diagnosed Reece with Giant Congenital Melanocytic Nevi (GCMN), a rare condition affecting 1 in 500,000 births. Their journey reflects the isolation, anxiety, and resilience families face—and the hope found through connection and community.
Hannah Diamond
Aug 293 min read


Back to School with Confidence: Tips & Resources for Nevus Families
Back-to-school season brings fresh starts—and for families impacted by congenital melanocytic nevi (CMN), it can bring extra questions, too. Whether it’s helping your child prepare for curious classmates or ensuring teachers understand their needs, Nevus Outreach has your back. From expert-led videos to customizable student letters, we’re here to help your family start the school year informed, confident, and supported. Let’s face the year ahead—together.
Nevus Outreach
Aug 82 min read


Sole Connections: From One Foot Nevus to Another
While preparing for a Nevus Neighbor event, we rediscovered Stacey’s 2011 post about living with a foot GCMN—and connected her with Kayla, a mom seeking support for her daughter’s similar condition. That message sparked a powerful connection rooted in shared experience, empathy, and hope. It’s moments like these that show how Nevus Outreach empowers and unites, ensuring no one walks this journey alone
Kimberly Phelps
Jul 213 min read


Amplifying Our Voices: Why Collective Advocacy is Crucial for Rare Skin Diseases
Your voice matters! This May, I joined fellow moms at Coalition of Skin Diseases' (CSD) Hill Day, representing Nevus Outreach. We shared our families' rare disease journeys with lawmakers, advocating for crucial policies like the Safe Step Act. Our personal stories amplified the need for change, proving collective action truly impacts lives.
Kimberly Phelps
Jul 23 min read


Katie and David Lane can't wait to welcome you to Orlando!
Learn more about our nevus conference host family as you prepare to join us in Orlando 2026.
Hannah Diamond
Jun 194 min read


Stronger Together: The Rise of a Nevus Community in Australia
Aussie families united for the first-ever nevus gathering! 🎉 Partnering with Rally for Rare, Nevus Outreach helped launch Nevus Australasia Foundation. Over 40 attendees, including 10+ nevus owners, connected in a heartwarming picnic. Inspired by his US experience, host Steven Bouris is building vital support. The Foundation will empower families & foster community. ❤️
Nevus Outreach
May 292 min read


Big News for Our Community: WHO Takes Landmark Step Towards Recognizing All Skin Diseases!
WHO backs WHA Skin Diseases Resolution! 🎉 Landmark step for global skin health, impacting millions. Nevus Outreach community, your voice is crucial! Contact your Minister of Health & use GlobalSkin resources to urge support before May 2025 WHA. Let's make history!
Nevus Outreach
May 283 min read


Building Momentum Across Borders: Highlights from Naevus Global and GlobalSkin Conferences
CMN Patient Representatives together at the Naevus Global Conference In April 2025, representatives from CMN organizations across nine...
Whitney Casal
May 263 min read
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