A space to honor, remember, and hold one another On May 15, we will gather across time zones, across countries, across our community to do something both simple and profoundly important: We will remember. Congenital Melanocytic Nevi and Neurocutaneous Melanocytosis are more than diagnoses—they are lived experiences that shape families, journeys, and, for some, unimaginable loss. Nevus Outreach is humbled and honored to introduce the CMN & NCM Day of Remembrance, an annual obs

Jonathan has lived with a nevus for nearly five decades, navigating childhood surgeries, public reactions, and ongoing treatments without the promise of a cure. His story is one of endurance, vulnerability, and remarkable strength. By sharing his journey, Jonathan offers insight, understanding, and hope...reminding others that life with a visible difference is not defined by appearances, but by resilience.

Running for Levi: Mike’s Boston Marathon Journey follows a father taking on 26.2 miles with purpose beyond the finish line. What began as a personal challenge became a way to honor his son Levi and give back to the CMN community through Nevus Outreach. Each mile Mike runs represents resilience, hope, and the power of showing up for family and community.

Born with a giant congenital melanocytic nevus, Josefina faces the world with confidence, joy, and courage. Supported by love, family, and community, her story reminds us that true beauty is found in authenticity, and that every visible difference carries a powerful story of strength.

“Growing up in Uganda, Naava was born with a facial CMN that made the world stare before they ever saw her. Today, she shares her powerful journey from feeling unseen to fully embracing her beauty, purpose, and identity. Her story is a reminder: you are loved, you are enough, and your uniqueness is your strength.

Born at just 27 weeks, baby Luiz entered the world fighting -and he has continued to inspire everyone around him ever since. Alongside the challenges of prematurity, Luiz was diagnosed with Giant Congenital Melanocytic Nevus (GCMN), a rare condition affecting roughly one in every 500,000 births. In this heartfelt blog, Luiz’s mother, Milena Servian, shares the emotional early days of uncertainty, courage, and overwhelming love.

When Jenna’s daughter, Dani, was born with a dark patch on her leg, fear and uncertainty took over- until a late-night hashtag search connected her with another mom, Kristin. Through Nevus Outreach’s online community, Jenna found not just information but hope, friendship, and strength. Today, Dani is thriving, and their families continue to share their journey-proof that one online connection can spark lifelong support and empowerment.

Attending the Nevus Outreach Conference can be a life-changing experience for families affected by CMN or NCM—offering rare access to medical experts, valuable education, and meaningful community connections. Because the event provides direct medical and psychosocial benefits, many families have been able to use their Health Savings Account (HSA) or Flexible Spending Account (FSA) to help cover costs.

When NICU nurse Laura welcomed her daughter Holland, she never expected a diagnosis she’d never heard of Congenital Melanocytic Nevus (CMN). Late one night, searching for answers, she found Nevus Outreach and with it, hope, understanding, and a community that changed everything. Read how one connection transformed her family’s journey and inspired her to help others find the same support.