From surviving childhood bullying, nevus removal surgery, cancer, and rejection to walking runways across the country, Luis Mojica Rodriguez has transformed visible difference into purpose. Born with GCMN, Luis spent years being told what he could not do- until he decided to redefine the narrative himself. Today, through modeling, advocacy, and public speaking, he empowers others to embrace who they are unapologetically and reminds the world that being different is not weakne

When Kenny Price first learned that his newborn son Charlie had a giant congenital melanocytic nevus (CMN), the future felt uncertain. Faced with fear, misinformation, and a rare diagnosis few understood, Kenny and his family began a journey that would span 22 years. Through surgeries, faith, friendship, and unwavering determination, he discovered that true strength isn't about having all the answers but showing up every day for the people you love.

Growing up with Congenital Melanocytic Nevi (CMN), Khalid Bethea spent years battling insecurity, isolation, and fear of judgment. Through family support, life experience, and learning to embrace himself fully, he discovered that strength is not about hiding differences -it is about living authentically. In this Men & CMN feature, Khalid shares his journey toward confidence, vulnerability, and finding value far beyond appearance.

When Chris Skinner’s daughter Sophia was born with Congenital Melanocytic Nevi (CMN), fear and uncertainty quickly became part of their family’s story. But over time, Chris learned that fatherhood was not about having all the answers- it was about showing up. Through surgeries, stares, faith, and hard conversations, he has learned to help Sophia live confidently, love deeply, and move through life without letting CMN define her.

For rare disease families, conference is more than an event — it can become the beginning of lifelong friendship, understanding, and support. This heartfelt story follows two families who met at their very first Nevus Outreach Conference when their sons, both diagnosed with CMN and NCM, were just infants. Sixteen years later, their connection continues to remind us that community can change the rare disease journey forever.

This summer, Nevus Outreach is bringing our community together through Summer Campfire Chats—a virtual series focused on connection, support, and education for individuals and families impacted by CMN and related conditions. From conference experiences and research updates to emotional support and meaningful moments, each monthly chat is designed to remind you that you are never alone. Pull up a seat, bring your story, and join us this summer.

Growing up with a visible nevus wasn’t always easy, but it taught me something powerful: I can’t control how others react, only how I respond. Choosing kindness over anger helped me find confidence in my own skin. What once felt like a challenge has become one of my greatest gifts—shaping me into someone who leads with empathy, strength, and self-acceptance.

A space to honor, remember, and hold one another On May 15, we will gather across time zones, across countries, across our community to do something both simple and profoundly important: We will remember. Congenital Melanocytic Nevi and Neurocutaneous Melanocytosis are more than diagnoses—they are lived experiences that shape families, journeys, and, for some, unimaginable loss. Nevus Outreach is humbled and honored to introduce the CMN & NCM Day of Remembrance, an annual obs

Jonathan has lived with a nevus for nearly five decades, navigating childhood surgeries, public reactions, and ongoing treatments without the promise of a cure. His story is one of endurance, vulnerability, and remarkable strength. By sharing his journey, Jonathan offers insight, understanding, and hope...reminding others that life with a visible difference is not defined by appearances, but by resilience.