Born at just 27 weeks, baby Luiz entered the world fighting -and he has continued to inspire everyone around him ever since. Alongside the challenges of prematurity, Luiz was diagnosed with Giant Congenital Melanocytic Nevus (GCMN), a rare condition affecting roughly one in every 500,000 births. In this heartfelt blog, Luiz’s mother, Milena Servian, shares the emotional early days of uncertainty, courage, and overwhelming love.

When Jenna’s daughter, Dani, was born with a dark patch on her leg, fear and uncertainty took over- until a late-night hashtag search connected her with another mom, Kristin. Through Nevus Outreach’s online community, Jenna found not just information but hope, friendship, and strength. Today, Dani is thriving, and their families continue to share their journey-proof that one online connection can spark lifelong support and empowerment.

Attending the Nevus Outreach Conference can be a life-changing experience for families affected by CMN or NCM—offering rare access to medical experts, valuable education, and meaningful community connections. Because the event provides direct medical and psychosocial benefits, many families have been able to use their Health Savings Account (HSA) or Flexible Spending Account (FSA) to help cover costs.

When NICU nurse Laura welcomed her daughter Holland, she never expected a diagnosis she’d never heard of Congenital Melanocytic Nevus (CMN). Late one night, searching for answers, she found Nevus Outreach and with it, hope, understanding, and a community that changed everything. Read how one connection transformed her family’s journey and inspired her to help others find the same support.

Join Nevus Outreach for DAF Day: Amplify Your Impact on October 10! Nevus Outreach is thrilled to announce our participation in the...

Born in Los Angeles with CMN, Valentina endured seven cosmetic surgeries her doctors said were “necessary.” Looking back, she knows they weren’t. After losing her mother to breast cancer, her sisters became her greatest support. Now 26, Valentina is a photographer and filmmaker in the Pacific Northwest. Finding Nevus Outreach felt like surfacing for air—she’s no longer alone. Her CMN, once a source of fear, has become her superpower of courage and resilience.

When Caitlyn Neuendorf welcomed her daughter Reece, her instincts told her something wasn’t right. What began as reassurance from doctors quickly turned into fear as specialists diagnosed Reece with Giant Congenital Melanocytic Nevi (GCMN), a rare condition affecting 1 in 500,000 births. Their journey reflects the isolation, anxiety, and resilience families face—and the hope found through connection and community.

Back-to-school season brings fresh starts—and for families impacted by congenital melanocytic nevi (CMN), it can bring extra questions, too. Whether it’s helping your child prepare for curious classmates or ensuring teachers understand their needs, Nevus Outreach has your back. From expert-led videos to customizable student letters, we’re here to help your family start the school year informed, confident, and supported. Let’s face the year ahead—together.

While preparing for a Nevus Neighbor event, we rediscovered Stacey’s 2011 post about living with a foot GCMN—and connected her with Kayla, a mom seeking support for her daughter’s similar condition. That message sparked a powerful connection rooted in shared experience, empathy, and hope. It’s moments like these that show how Nevus Outreach empowers and unites, ensuring no one walks this journey alone