Back-to-school season brings fresh starts—and for families impacted by congenital melanocytic nevi (CMN), it can bring extra questions, too. Whether it’s helping your child prepare for curious classmates or ensuring teachers understand their needs, Nevus Outreach has your back. From expert-led videos to customizable student letters, we’re here to help your family start the school year informed, confident, and supported. Let’s face the year ahead—together.

While preparing for a Nevus Neighbor event, we rediscovered Stacey’s 2011 post about living with a foot GCMN—and connected her with Kayla, a mom seeking support for her daughter’s similar condition. That message sparked a powerful connection rooted in shared experience, empathy, and hope. It’s moments like these that show how Nevus Outreach empowers and unites, ensuring no one walks this journey alone

Your voice matters! This May, I joined fellow moms at Coalition of Skin Diseases' (CSD) Hill Day, representing Nevus Outreach. We shared our families' rare disease journeys with lawmakers, advocating for crucial policies like the Safe Step Act. Our personal stories amplified the need for change, proving collective action truly impacts lives.

Learn more about our nevus conference host family as you prepare to join us in Orlando 2026.

Aussie families united for the first-ever nevus gathering! 🎉 Partnering with Rally for Rare, Nevus Outreach helped launch Nevus Australasia Foundation. Over 40 attendees, including 10+ nevus owners, connected in a heartwarming picnic. Inspired by his US experience, host Steven Bouris is building vital support. The Foundation will empower families & foster community. ❤️

WHO backs WHA Skin Diseases Resolution! 🎉 Landmark step for global skin health, impacting millions. Nevus Outreach community, your voice is crucial! Contact your Minister of Health & use GlobalSkin resources to urge support before May 2025 WHA. Let's make history!

CMN Patient Representatives together at the Naevus Global Conference In April 2025, representatives from CMN organizations across nine...

Summer just got a whole lot warmer — Campfire Chats are here! Join Nevus Outreach all summer long for our new Live Series, featuring powerful conversations, expert insights, and real stories from the CMN community. From mental health to medical research, advocacy to connection — there’s something for everyone.

The Rally for Rare event in Pennsylvania was nothing short of incredible. From the moment guests walked into our private space, it felt more like a family reunion than a first-time gathering.