More Than a Denver Meetup: Finding Connection in the Nevus Community

The recent Nevus Outreach rally in Denver radiated warmth, connection, and a powerful sense of community. For many families, including first-time attendees, the event offered a unique opportunity to connect in person with others who share similar experiences. With three nevus owners present—including a 6-week-old—and two sets of grandparents, the gathering highlighted the diversity and strength within the community. Hosted at a local restaurant, the setting allowed for relaxed, meaningful conversations, creating a space where attendees could share stories, offer support, and simply enjoy one another’s company.

What made this rally especially impactful was its emphasis on informal connection over formal programming. Unlike larger conferences, this more intimate event centered on conversation, support, and shared experience. Attendees found comfort in realizing they are not alone—whether as parents navigating medical decisions or as individuals living with nevi. One family shared how their motivation to attend stemmed from a desire to build a local community after experiencing the powerful support of last summer’s national conference. These personal stories reminded everyone that even though congenital nevi are rare, the journey doesn’t have to be a lonely one.

Looking ahead

The momentum from this rally is already sparking future plans, including hopes for another meetup this summer in the Denver area. “The biggest thing is showing up, the physical presence we have for each other is one of the most valuable forms of support that we can provide.” says host Sarah Nelson-Taylor. It’s a reminder that while research and resources are critical, sometimes the most meaningful support comes from being physically present, sharing a meal, and saying, "We’re in this together”.