Nevus Outreach News

We are excited to announce our first Rare Disease Day Gala in Boston, MA on February 28th, 2025

We are happy to announce the Nevus Owners Outcomes Registry (NOOR) will be going live September 27, 2024.

Breaking news from the Naevus Global meeting in Paris: Caring Matters Now CEO Jodi Whitehouse has shared a landmark research accomplishment by Professor Veronica Kinsler, in which NRAS, the most common mutation causing CMN is silenced. We are excited to share this advancement with our community and support the dissemination of information on the discovery worldwide. Nevus Outreach has already been contacted by bio-tech companies interested in investigating US clinical trials.

Nevus Outreach Welcomes Wiatt Bowers as New Board Chair! Bowers brings a wealth of experience, dedication, and passion to the role, further strengthening Nevus Outreach’s commitment to improving the lives of those affected by CMN.