Rare Disease Day | Nevus Outreach

Awareness is Everything

Every child and adult with congenital melanocytic nevi (CMN) deserves access to expert care, a strong support system, and the best possible research to improve their quality of life. But for too many families, finding knowledgeable doctors and connecting with others who understand their journey remains a challenge.

In honor of Rare Disease Day 2026, every donation will be matched dollar-for-dollar, doubling your impact toward our $20,000 goal.

Your gift will:

✅ Fund outreach and engagement events to connect CMN families with experts.
✅ Train and support local patient leaders to guide this initiative.
✅ Strengthen research partnerships to advance CMN studies and treatments.
✅ Establish a proven model that we can scale to other regions nationwide.

We are working to raise $20,000 to support our Research Road Map project. With your support, we’ll create a lasting infrastructure that fuels medical advancements and transforms the CMN experience for generations to come.

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Awareness is Everything

Awareness in the Delivery Room.
Awareness of Accurate information.
Awareness of Expertise within the Care Team.

But most importantly, Awareness of People Like You. People in this community who care.
Awareness that they are not alone.
Awareness is Everything.

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What is Rare Disease Day?

Rare Disease Day, celebrated on February 28, is an international initiative to raise awareness about rare conditions like Congenital Melanocytic Nevus (CMN) characterized by the presence of multiple birthmarks or moles on the skin.

In conjunction with the global Rare Disease Day global movement, our mission is to create visibility and support for individuals with CMN, helping foster greater understanding and acceptance worldwide.

We celebrate this day to bring together the global CMN community, empower those affected, and educate the public about CMN.

By increasing awareness, we hope to encourage research, promote early diagnosis, and create a more inclusive world where differences are celebrated, not stigmatized.