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The Mission of Nevus Outreach, Inc.

Nevus Outreach is dedicated to driving awareness, fostering a supportive community, and advancing research for people affected by congenital melanocytic nevi and related conditions.

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Awareness

Driving awareness and education about large congenital melanocytic nevi (CMN) and neurocutaneous melanocytosis (melanosis) (NCM) including:

  • Producing literature on CMN and NCM, using content approved by our Professional Advisory Committee.
     

  • Distributing this educational material as widely as possible to doctors, patients and the public using direct mail, in-person handouts and the Internet.

Support

Fostering supportive community with CMN and NCM and related conditions including:

  • Offering support for psychological issues and the everyday problems specific to people with CMN and NCM.
     

  • Holding biennial conferences which bring people affected by CMN and NCM together with each other and with medical and psychosocial professionals.
     

  • Providing services such as a Facebook group, email based discussion groups, and online publications to help those affected by CMN and NCM to interact and share experiences and insight with each other.
     

  • Promoting social and psychological research and programs which benefit people affected by CMN and NCM.
     

  • Helping people with CMN and NCM who require medical treatment to obtain it.
     

  • Making up-to-date information about current research and medical discoveries available to members and other interested parties.

Research

Advancing Research for treatments and cures for those with CMN and NCM including:

  • Treatments: Exploring innovative surgical techniques, laser therapies, and medication options for managing CMN and NCM, minimizing risks and maximizing cosmetic outcomes.

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  • Funding Research: Securing grants and collaborating with institutions to fuel cutting-edge studies and accelerate breakthroughs.

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  • Data Collection: Partnering with individuals and families to build comprehensive databases on CMN and NCM, providing invaluable insights for research and clinical practice.

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  • Psychological & Social Impact: Investigating the emotional and social challenges faced by those living with CMN and NCM, developing support strategies and fostering positive self-image.

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