Heartwarming Connections: The Tulsa Nevus Outreach Rally

The Leon family hosted a heartwarming Nevus Outreach Rally for Rare event in Tulsa, where four incredible families gathered at CiCi’s Pizza for an afternoon of connection and community. The setting was casual and welcoming, but the impact was deeply meaningful. Sharing a meal allowed conversations to unfold naturally, centered around our children’s journeys and the shared experiences that unite us as nevus families.

As the attendees talked, it became clear just how powerful these small gatherings can be. Stories were exchanged, support was offered, and a strong sense of understanding filled the room. For many, it was a rare opportunity to connect face-to-face with others who truly “get it”—who understand the medical decisions, the emotions, and the resilience that comes with raising a child with CMN. 

“You made this rally truly special, and we look forward to creating more moments like this together.” says Alyssa Huser, one of the nevus parents in attendance. They left with full hearts, full stomachs, and a renewed sense of connection. 

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Would you like to share your story?

Visit: nevus.org/shareyourrare