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AMPLIFY 2026: For a Few Days, None of Us Were Rare
In July, the Nevus Outreach community came together in Orlando for AMPLIFY 2026, our largest and most successful conference yet. For three unforgettable days, people affected by CMN connected, learned, celebrated, and found something that can be hard to come by when living with a rare condition: a place where no explanation is necessary. Take a look back at the moments that made AMPLIFY 2026 so special and why the connections made in Orlando will carry us all the way to Portl

Stephanie Virts
Aug 146 min read


More Than a Conference, A Lifelong Connection.
For rare disease families, conference is more than an event — it can become the beginning of lifelong friendship, understanding, and support. This heartfelt story follows two families who met at their very first Nevus Outreach Conference when their sons, both diagnosed with CMN and NCM, were just infants. Sixteen years later, their connection continues to remind us that community can change the rare disease journey forever.

Kimi Phelps
May 284 min read


Use Your HSA to Make Attending the Nevus Outreach Conference & Reunion More Affordable
Attending the Nevus Outreach Conference can be a life-changing experience for families affected by CMN or NCM—offering rare access to medical experts, valuable education, and meaningful community connections. Because the event provides direct medical and psychosocial benefits, many families have been able to use their Health Savings Account (HSA) or Flexible Spending Account (FSA) to help cover costs.

Kimi Phelps
Nov 6, 20251 min read


Katie and David Lane can't wait to welcome you to Orlando!
Learn more about our nevus conference host family as you prepare to join us in Orlando 2026.
Hannah Diamond
Jun 19, 20254 min read
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