Tears, triumphs, and a whole lot of heart! 😭❤️ Our weekend in Boston with Nevus Outreach was an emotional rollercoaster AND a success.

“If I was going to run this race, I was going to run it for Raya. This is the perfect platform to raise awareness and funds for CMN.

It was Spring 2010, and I was frantically trying to find more information about this “hairy nevus” that my doctor said my newborn had....

Updated April 2025: Congratulations to our 2025 Speech Competition Winners! The 2025 Global Speech Competition, co-hosted by Nevus...

Like A Marathon, Kristin takes every day of advocacy step-by-step. Advocacy, acceptance, and research are priorities ththey never expected.

Our 1,500,000. A number that defines our lives. Jace's rare disease has tested us, but we've found strength in our love and hope.

CMN Awareness Day! Mark Sept 28th & join the challenge (Sept 22-28): share stories, raise awareness & celebrate the CMN community!

Weston's birth was a whirlwind. We discovered he had CMN & NCM. Through Nevus Outreach, we found strength and hope.