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Global Youth Speech Competition
Updated April 2025: Congratulations to our 2025 Speech Competition Winners! The 2025 Global Speech Competition, co-hosted by Nevus...

Whitney Casal
Dec 18, 20243 min read


Like A Marathon, Kristin takes every day of advocacy step-by-step.
Like A Marathon, Kristin takes every day of advocacy step-by-step. Advocacy, acceptance, and research are priorities ththey never expected.

Nevus Outreach
Nov 26, 20244 min read


Navigating the Unknown: Jace's 1:500,000 Rare Diagnosis
Our 1,500,000. A number that defines our lives. Jace's rare disease has tested us, but we've found strength in our love and hope.

Alyssa Huser
Oct 21, 20244 min read


Global CMN Awareness Day September 28th!
CMN Awareness Day! Mark Sept 28th & join the challenge (Sept 22-28): share stories, raise awareness & celebrate the CMN community!

Nevus Outreach
Sep 19, 20243 min read


Weston's Journey: A Miracle Among Miracles
Weston's birth was a whirlwind. We discovered he had CMN & NCM. Through Nevus Outreach, we found strength and hope.

Kimberly Phelps
Sep 1, 20246 min read
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