Introducing CMN & NCM Day of Remembrance

A space to honor, remember, and hold one another

On May 15, we will gather across time zones, across countries, across our community to do something both simple and profoundly important:

We will remember.

Congenital Melanocytic Nevi and Neurocutaneous Melanocytosis are more than diagnoses—they are lived experiences that shape families, journeys, and, for some, unimaginable loss.

Nevus Outreach is humbled and honored to introduce the CMN & NCM Day of Remembrance, an annual observance dedicated to honoring the lives of individuals whose journeys were cut short by complications of CMN and NCM.

This day is not about awareness in the traditional sense.

It is about presence.

It is about love that continues.

It is about making sure these lives are never reduced to statistics or forgotten in the pace of

progress.

https://www.youtube.com/watch?v=4sHy6s96neE

Why This Day Matters

For many in our community, CMN and NCM are not just diagnoses—they are journeys marked by uncertainty, resilience, and, for some, profound loss.

Behind every story is a child, a parent, a family.A laugh. A milestone. A moment that mattered.

And for those we have lost, there has not always been a dedicated space to collectively pause and say:

We remember you.

You mattered.

You still matter.

The CMN & NCM Day of Remembrance was created to hold that space intentionally, compassionately, and together.

What This Day Will Look Like

This is not a day filled with programming or expectations. Instead, we invite our community to engage in whatever way feels most meaningful:

• Lighting a candle in honor of a loved one

• Sharing a photo or memory

• Saying their name out loud

• Taking a quiet moment of reflection

• Gathering with family or others who understand

Whether public or private, spoken or silent—every act of remembrance matters.

A Community That Remembers Together

Grief can feel isolating. But within this community, no one walks that path alone.

On May 15, we come together not to reopen wounds—but to acknowledge them, to honor them, and to stand beside one another in a shared understanding that these lives changed us.

They shaped our community.

They continue to shape our purpose.

And they are part of every step forward we take.

How to Participate

In the days leading up to May 15, we will invite families to share the names and stories of those they wish to honor.

Nevus Outreach will create a shared space for remembrance—one that reflects the depth, diversity, and love within this community.

If you choose to participate, know this:

There is no right way to remember.

There is only your way.

With Love, Always

To the families who carry these stories every day—

we see you.

we honor your loved ones.

and we hold space with you.

On May 15, and every day after.

Because every life matters. Every story matters. Every memory lives on.

Participate in the CMN & NCM Day of Remembrance

Families who wish to honor their loved one are invited to submit a name, photo, or memory to be included in our shared tribute.

Submit here: nevus.org/remember

Out of respect for each family, memorial requests may only be submitted by an immediate family member.