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More Than a Conference, A Lifelong Connection.
For rare disease families, conference is more than an event — it can become the beginning of lifelong friendship, understanding, and support. This heartfelt story follows two families who met at their very first Nevus Outreach Conference when their sons, both diagnosed with CMN and NCM, were just infants. Sixteen years later, their connection continues to remind us that community can change the rare disease journey forever.

Kimi Phelps
May 284 min read


Back to School with Confidence: Tips & Resources for Nevus Families
Back-to-school season brings fresh starts—and for families impacted by congenital melanocytic nevi (CMN), it can bring extra questions, too. Whether it’s helping your child prepare for curious classmates or ensuring teachers understand their needs, Nevus Outreach has your back. From expert-led videos to customizable student letters, we’re here to help your family start the school year informed, confident, and supported. Let’s face the year ahead—together.

Nevus Outreach
Aug 8, 20252 min read
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