top of page


My Hidden Super Power: Sharing My CMN Journey So Far
Born in Los Angeles with CMN, Valentina endured seven cosmetic surgeries her doctors said were “necessary.” Looking back, she knows they weren’t. After losing her mother to breast cancer, her sisters became her greatest support. Now 26, Valentina is a photographer and filmmaker in the Pacific Northwest. Finding Nevus Outreach felt like surfacing for air—she’s no longer alone. Her CMN, once a source of fear, has become her superpower of courage and resilience.
Hannah Diamond
Sep 123 min read


Sole Connections: From One Foot Nevus to Another
While preparing for a Nevus Neighbor event, we rediscovered Stacey’s 2011 post about living with a foot GCMN—and connected her with Kayla, a mom seeking support for her daughter’s similar condition. That message sparked a powerful connection rooted in shared experience, empathy, and hope. It’s moments like these that show how Nevus Outreach empowers and unites, ensuring no one walks this journey alone

Kimberly Phelps
Jul 213 min read


Reflecting on Connection and Community: Rally for Rare Orlando
Small but mighty! Nevus Outreach's Orlando Rally for Rare on 3/8 brought heartfelt connections & lifelong support insights.

Danielle Bestoso
Apr 82 min read


Weston's Journey: A Miracle Among Miracles
Weston's birth was a whirlwind. We discovered he had CMN & NCM. Through Nevus Outreach, we found strength and hope.

Kimberly Phelps
Sep 1, 20246 min read
bottom of page