When NICU nurse Laura welcomed her daughter Holland, she never expected a diagnosis she’d never heard of Congenital Melanocytic Nevus (CMN). Late one night, searching for answers, she found Nevus Outreach and with it, hope, understanding, and a community that changed everything. Read how one connection transformed her family’s journey and inspired her to help others find the same support.

When Caitlyn Neuendorf welcomed her daughter Reece, her instincts told her something wasn’t right. What began as reassurance from doctors quickly turned into fear as specialists diagnosed Reece with Giant Congenital Melanocytic Nevi (GCMN), a rare condition affecting 1 in 500,000 births. Their journey reflects the isolation, anxiety, and resilience families face—and the hope found through connection and community.

It was Spring 2010, and I was frantically trying to find more information about this “hairy nevus” that my doctor said my newborn had....

Like A Marathon, Kristin takes every day of advocacy step-by-step. Advocacy, acceptance, and research are priorities ththey never expected.

Weston's birth was a whirlwind. We discovered he had CMN & NCM. Through Nevus Outreach, we found strength and hope.