When Kenny Price first learned that his newborn son Charlie had a giant congenital melanocytic nevus (CMN), the future felt uncertain. Faced with fear, misinformation, and a rare diagnosis few understood, Kenny and his family began a journey that would span 22 years. Through surgeries, faith, friendship, and unwavering determination, he discovered that true strength isn't about having all the answers but showing up every day for the people you love.

When Chris Skinner’s daughter Sophia was born with Congenital Melanocytic Nevi (CMN), fear and uncertainty quickly became part of their family’s story. But over time, Chris learned that fatherhood was not about having all the answers- it was about showing up. Through surgeries, stares, faith, and hard conversations, he has learned to help Sophia live confidently, love deeply, and move through life without letting CMN define her.

Running for Levi: Mike’s Boston Marathon Journey follows a father taking on 26.2 miles with purpose beyond the finish line. What began as a personal challenge became a way to honor his son Levi and give back to the CMN community through Nevus Outreach. Each mile Mike runs represents resilience, hope, and the power of showing up for family and community.

“If I was going to run this race, I was going to run it for Raya. This is the perfect platform to raise awareness and funds for CMN.