Together in the Rare: Honoring Allison in San Antonio, TX
- Nevus Outreach
- Apr 26, 2025
- 2 min read
On March 16th, something truly beautiful happened. A small group of people—connected not by geography, profession, or even hobbies, but by something far deeper—gathered for a Rare Disease Day rally in honor of someone who changed our lives: Allison Lopez.
Rare Disease Day is often quiet for many of us. Our conditions are rare, our experiences misunderstood, and the sense of isolation can be overwhelming. But on this day, we didn’t feel rare—we felt recognized, embraced, and connected.
We came together not just to raise awareness, but to create space—for stories, for hugs, for laughter, and even for tears. We wore our rare with pride. At “Tons of Fun”, strangers became fast friends, and friends became family. The rally wasn’t large, but it was powerful. It was a space filled with the kind of understanding that doesn’t need long explanations. The kind of love that honors those we’ve lost while lifting up those still fighting.
Allison Lopez was a light in this world—joyful, fierce, full of compassion. She faced the challenges of CMN/Melanoma with unmatched strength and used her voice to uplift others. Even in her absence, her presence was unmistakable. We held this event not just in her memory, but in her spirit. The spirit of never giving up. Of finding community in the unlikeliest places. We were reminded that though our diagnoses may be rare, our determination, our love, and our voices are anything but.
Thank you to everyone who showed up. Your presence made all the difference. Thank you to the families who traveled, the advocates who fight every day, and the friends who have become part of this journey.
And thank you, Allison, for reminding us that “rare” doesn’t mean alone.
Would you like to share your story?
Visit: nevus.org/shareyourrare
This is such a touching tribute to Allison Lopez and a powerful account of a truly meaningful Rare Disease Day rally. It beautifully conveys the sense of community and connection that can blossom even in the face of profound challenges. The idea of transforming "rare" from a feeling of isolation into one of recognized strength and shared experience is incredibly inspiring. Allison's spirit clearly continues to make a profound impact. For others looking to share their stories or organize similar heartfelt events, ensuring their message is clear and impactful is key. Tools like AI Cleaner Text could be helpful for tidying up event announcements or personal narratives, ensuring every word resonates just right.
This article beautifully captures the profound impact Allison Lopez had, turning a day that often highlights isolation into one of powerful community and shared strength. It's truly moving to see how her spirit continues to inspire people to come together and find connection in their 'rare' journeys. The way strangers became family at "Tons of Fun" speaks volumes about the human need for understanding and support. For anyone looking to share or document such impactful stories, tools that can help organize thoughts, like those found at Video to Prompt, could be incredibly useful for bringing these narratives to a wider audience. Thank you for sharing such a touching tribute.
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What a beautiful tribute to Allison and the incredible impact she made in the San Antonio community. Events like "Together in the Rare" remind us how important it is to come together and support one another during challenging times. As someone from the Roofing Repair Phoenix AZ area, I'm inspired to see communities across the Southwest rallying around important causes like this. Thank you for sharing this heartfelt story and keeping Allison's memory alive through such meaningful work.