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Men & CMN: The Way We Carry It- Nevus Owner Luis Mojica-Rodriguez's Story
From surviving childhood bullying, nevus removal surgery, cancer, and rejection to walking runways across the country, Luis Mojica Rodriguez has transformed visible difference into purpose. Born with GCMN, Luis spent years being told what he could not do- until he decided to redefine the narrative himself. Today, through modeling, advocacy, and public speaking, he empowers others to embrace who they are unapologetically and reminds the world that being different is not weakne

Kimi Phelps
4 days ago5 min read
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Amplifying Our Voices: Why Collective Advocacy is Crucial for Rare Skin Diseases
Your voice matters! This May, I joined fellow moms at Coalition of Skin Diseases' (CSD) Hill Day, representing Nevus Outreach. We shared our families' rare disease journeys with lawmakers, advocating for crucial policies like the Safe Step Act. Our personal stories amplified the need for change, proving collective action truly impacts lives.

Kimberly Phelps
Jul 2, 20253 min read
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Big News for Our Community: WHO Takes Landmark Step Towards Recognizing All Skin Diseases!
WHO backs WHA Skin Diseases Resolution! ๐ Landmark step for global skin health, impacting millions. Nevus Outreach community, your voice is crucial! Contact your Minister of Health & use GlobalSkin resources to urge support before May 2025 WHA. Let's make history!

Nevus Outreach
May 28, 20253 min read
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Building Momentum Across Borders: Highlights from Naevus Global and GlobalSkin Conferences
CMN Patient Representatives together at the Naevus Global Conference In April 2025, representatives from CMN organizations across nine...

Whitney Casal
May 26, 20253 min read
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