Programs Coordinator

Position Summary:

Nevus Outreach is seeking a highly organized, community-minded Programs Coordinator to support our evolving membership ecosystem and help deliver high-impact programming for families in the United States and around the world.

This role blends data/membership management with the development and implementation of support resources and programs. The ideal candidate is detail-oriented, people-focused, and excited to build meaningful, supportive experiences for the CMN community.

What You’ll Gain:

• A collaborative role in shaping community-facing programming for a global rare disease nonprofit

• Experience designing and coordinating support offerings

• Hands-on exposure to CRM systems, member workflows, and data-informed decision-making

• The opportunity to strengthen community belonging and engagement

• A flexible, remote position where your work directly impacts families navigating CMN

Responsibilities:

In this role, you will:

Program Development & Coordination (Primary Focus ~60%)

In partnership with staff, you will help brainstorm, plan, deliver, and manage member-facing programs, including:

Facilitate Community Focus Groups

• Coordinate logistics, scheduling, and follow-up for focus groups

• Capture feedback into actionable insights for steering programming, based on objectives provided by the Director of Membership & Metrics

Resource Development & Maintenance

• Update, organize, and support the creation of resources, guides, and materials in the member portal

• Assist in producing educational and support resources for CMN

Support Groups & Community Circles

• Plan virtual support groups, peer-led circles, and/or topic-specific educational sessions

• Handle scheduling, reminders, Zoom logistics, follow-ups, and simple reporting

• Support early development of a“First 90 Days” series for new members

Conference-Adjacent Programming Support

• Assist with pre-conference communications and program preparation for the 2026 Nevus Outreach Conference & Reunion

Membership Support (Secondary Focus ~40%)

This role will also ensure that core systems remain accurate, functional, and well-organized.

• Support management of membership onboarding, renewals, and communications

• Support staff in maintaining accurate records in our CRM with an emphasis on data cleanliness and consistency

• Pull simple reports for programming, communications, and community insights

• Assist with segmentation for email campaigns and program outreach

• Respond to member questions and provide warm, accurate, timely support

Qualifications:

• Strong organizational skills with excellent attention to detail

• Experience in program coordination, community support roles, education, or nonprofit settings

• Strong written and verbal communication skills

• Ability to work independently, take initiative, and communicate proactively

• Warm, friendly demeanor when interacting with families

• Ability to manage multiple small tasks and deadlines across a week

Bonus (not required):
Experience with rare disease communities, membership programs, support groups, curriculum/resource development, or virtual event facilitation.

Time Commitment & Compensation:

• This independent contractor role is compensated at $18.00/hour with an anticipated 8–12 hours of work per week.

• Remote-first, with some availability during Eastern/Central U.S. business hours

• Start Date: Early January 2026

• Independent Contractor (1099) role

• Required attendance to support the Nevus Outreach Conference July 25-28, 2026

• Initial evaluation period of 90 days, with possible continuation through 2026