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Rally for Rare - Rochester, NY

💙 Don’t Miss Rally for Rare – Rochester, NY 💙 We’re gathering soon, and we’d love to see you there. Join us for Rally for Rare, a meaningful afternoon focused on community, connection, and support for individuals and families affected by Congenital Melanocytic Nevus (CMN).

Time & Location

Feb 25, 2026, 4:30 PM – 6:30 PM EST

Tom Wahl's Brighton, 2545 Monroe Ave, Rochester, NY 14618, USA

About the event

Rally for Rare – Event Details

Rally for Rare events are small, in-person gatherings held in communities across the country to bring together individuals and families affected by Congenital Melanocytic Nevus (CMN), along with supporters and advocates who want to stand with the rare disease community.


Each event is hosted by a dedicated community member. Your host for this event is Kimi, who is honored to help create a welcoming and supportive space.


These gatherings are low-pressure and connection-focused, with no formal program—just time to connect, listen, and build community at your own pace.


Events may be held at restaurants, cafés, or community spaces. When hosted at a restaurant, food and drinks are available for purchase and are the responsibility of each attendee.


Families are welcome, sharing is always optional, and whether you stay briefly or for the full event, your presence matters.

Share this event

Get in touch:

Phone:  501-500-1932

Email: info@nevus.org

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Address:

361 Southwest Drive, #353

Jonesboro, AR 72404

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Join Our Team!

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Being a part of the community can help nevus owners know that they're not alone. None of us are alone.
Our Mission:

Nevus Outreach is dedicated to driving awareness, fostering a supportive community, and advancing research for people affected by congenital melanocytic nevi and related conditions.

EIN: 59-3455128

Nevus Outreach is a registered 501(c)(3) nonprofit organization dedicated to supporting individuals and families affected by CMN and NCM.

Medical Disclaimer: The information provided on this website is for educational purposes only and is not intended as medical advice. Always consult a qualified healthcare provider regarding medical concerns.

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