Welcome to Nevus Outreach, Inc.
Nevus Outreach, Inc. is a non-profit organization that was founded by families affected by Large Nevi and Neurocutaneous Melanocytosis (NCM) to offer support and information to others who are similarly affected, improve awareness and education of the condition, and encourage and sponsor research that will lead to effective treatments and a cure.
2010 International Nevus Outreach Conference
Registration is now available for the next Nevus Outreach Conference to be held July 7-10 2010 at the Marriott Solana Hotel in Westlake, Texas. We expect it to be bigger and better than ever! (more)
Raise Money and Earn Free Conference Registrations and Hotel Nights!
Announcing the new Grassroots Event Fundraising Campaign – you're opportunity to help support the 2010 Conference and earn free conference registrations and hotel nights! Lots of people have raised money for Nevus Outreach in the past, but we’ve never been so organized! (more)
Fundraising Toolbox
We have just published the most comprehensive collection of original fundraisers people have put on for Nevus Outreach! There's something here for everyone. It's a guarantee that you will see things on this list you never even thought of. It's a guarantee you will see things on this list that you can do easily! (more)
Supporters Raise Their Glasses, and Cask Night Event Raises More Than $1,400!
The beer was custom brewed in honor of Ariana Reinart, who is five years old and has a giant nevus. The charity fundraiser took place at Bethlehem Brew Works in Pennsylvania. The cask was empty in one hour. More than $1,400 was raised for Nevus Outreach, and we've got the pictures to prove it! (more)
New Families Connect at Cape Cod Gathering
Over Labor Day Weekend, 2009, another great Nevus Gathering was held at a beach house on Cape Cod in Massachusetts. A total of 29 people signed up to attend the party, including three families who had never met anyone else from Nevus Outreach. There were eight people with giant nevi, half of whom were adults – a perfect mix. (Lots of photos!) (more)
Medical Research Update – August 2009
In early July we held meetings in Geneva to review the “Searching to Conquer” project. The following week we traveled to the Society for Pediatric Dermatology annual meeting in Philadelphia, met with Canfield Scientific and also met with Dr. Miguel Reyes and toured his new facilities at the new state-of-the-art Children’s Hospital of Pittsburg. (more)
Team Stockbridge - The Dust Settles
Finally, the dust has settled on Team Stockbridge. The PacTour riders, who started in Oregon on July 5, reached the Atlantic Ocean in Georgia, right on schedule 30 days later! This was a remarkable event in so many ways: Before it started, Brian Stockbridge committed himself to riding a bicycle across the USA to honor a promise he made his son David, who succumbed to complications of neurocutaneous melanocytosis (NCM) (more)
People with Nevi - Ireland and the UK
People with big nevi undoubtedly consider others who have big nevi to be "points of interest." Recently, the group called Caring Matters Now (CMN), a sort of "sister group" to Nevus Outreach located throughout the UK and Ireland, offered to share the postal codes of their 220 constituents (more)
Poconos Gathering #2 - Swimming/Pizza/Bowling
March 20-22, 2009 was the date and Pennsylvania was the place! Fifty-one people from 11 families gathered at the Split Rock Resort for a couple days of fun and good company. With swimming, pizza and bowling, what more could you ask for? This was the second time in as many years that people in the Northeast part of the USA, knit together by an unlikely congenital birth condition, organized themselves to get some quality time together. (more)
More Maps Added
The data just keeps coming! Thanks to Dr. Sven Krengel and his team in Germany, we are now able to publish new nevus maps of Austria, Germany and Switzerland! We have also mapped our dots in Mexico. It's amazing to think that only a few years ago, just about everyone on these maps thought they were the only one in the world (more)
Big Year for Nevus Science
2009 may well be remembered for a lot of reasons, and Nevus Science will move foward at an unprecedented pace this year. Like a snowball, Dr. A talks to Dr. B talks to Dr. C talks to Dr. D ... next thing you know, everyone wants to get involved with what we are doing (more)
G'day - Australia Now Mapped!
I can say "G'day" because I used to work for an Australian company, Repco, as 2IC ("second in command" which is Australian [pronounced "strine"] for "Assistant Manager") of a company store. Now that we have my credentials in order, I am pleased to announce that the continent of Australia has been added as one of our (more)
Neurocutaneous Melanocytosis MRI Update
In September, 2008 we put our newly-forged research process with Dr. Barkovich at UC San Francisco to the test. This world expert on reading MRIs for NCM wrote the protocol on how to shoot the scans so today almost any MRI facility can scan for NCM. (more)
Please Update Your Contact Info!
A mobile society has its benefits, but please keep us informed when you move or change email addresses. (more)
Nevus Neighborhood Access
There is a part of this web site that is accessible only to people who are affected by giant nevi. Nevus Outreach co-founder Kevin Williams envisioned a place within nevus.org where there would be content especially for people with nevi and their family members. (more)
2008 Nevus Outreach Conference in Review
Fort Worth, Texas (more)
Bring the Nevus Quilt Tour to Your Area
Sue Palmquist, former Board President and Nevus Outreach Volunteer, coordinated the first Nevus Outreach Quilt. The intention was for the quilt to be an ambassador for Nevus Outreach, raising awareness about Giant Nevi and Neurocutaneous Melanocytosis. Bring the quilt to your community (more)
