Rare Disease Day 2022
Rare Disease Day is the official international awareness-raising campaign for rare diseases.
Join Nevus Outreach in raising awareness of CMN and NCM!
There are many ways to get involved on Rare Disease Day. Below are some simple steps and suggestions to raise awareness of CMN and NCM. Check it out!
1. Download and print our poster here to share why you are raising awareness about Nevus.
2. Share your poster and photographs with friends & family and on social media on Rare Disease Day, February 28, 2022.
Use the hashtags #RareDiseaseDay #nevusoutreach #CMN #NCM and tag @rarediseaseday @nevusoutreach
3. On social media, use the official twibbon and Facebook frame on your social profiles. You can download tons of options here!
4. Send a communication to your local policy makers. Download and print our sample advocacy letter here.
Together, we can raise awareness of CMN and NCM.
About Rare Disease Day
EURORDIS-Rare Diseases Europe and its Council of National Alliances launched Rare Disease Day in 2008. Check out the Rare Disease Day website at rarediseaseday.org.
Did you know? Research the maintained list of rare diseases on NIH/GARD’s website rarediseases.info.nih.gov by using their catalog. Search for Giant Congenital Nevus (CMN) and Neurocutaneous Melanocytosis (NCM).