As Nevus Outreach approaches its 20-year anniversary, we can cite numerous milestones and achievements…all worthy of praise. I will focus on the major standouts from my perspective as a board member, mother to a child with a giant nevus, and as a “family” member of the Nevus Family.
November 2016 Articles
Winter 2016 brings with it the close of another successful year for Nevus Outreach, and, for me, the excitement that 2017 will be the 20th anniversary of our big nevus family! Nevus Outreach was founded in Nashville on July 1, 1997. Megan and Kathy and I were there.
Nevus Outreach’s first ten conferences are in the books! Looking back on them, it’s remarkable what a little dogged determination can do! We managed to network together thousands of people affected by giant nevi, and in the process, we learned who the doctors are who care the most about them, too.
Are you one of the many people in Nevus Outreach that was told by a doctor that your child with a nevus might not live to be very old, and maybe you should just take them home and love them? A lot of us remember this as a defining moment.
A story like so many others – when their daughter Elle was born 11 years ago, Mike and Betsy Loehr longed for answers, encouragement and hope. Elle was born with a giant nevus. Even though this is really rare, when they found Nevus Outreach they found all that and more.