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Read about the latest happenings and exciting developments in the world of nevus.

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Check out the pages listed below for more information. Don't see what you're looking for? Contact us, & we'd be happy to answer any questions you may have.

The Best Papers on CMN and Related Conditions

Naevus Global has released a bibliography of the best papers about congenital melanocytic nevi and neurocutaneous melanocytosis, and related conditions.  Continue Reading »

 

Just announced! The 2016 International Nevus Outreach Conference will be held...

In Chicago! We've listened to your feedback and in 2016 we will be holding the conference in the Windy City! The 2016 conference will be held June 29th through July 2nd. More information will be available soon, so please check back with us for details. We hope to see you there!  Continue Reading »

 

Moving Forward

Nevus Outreach is all about moving forward knowing as we tell our story and support each other while pursuing answers and solutions, each step of the journey brings us closer to a cure.  Continue Reading »

 

Shop to Support Nevus Outreach

Looking for more ways to support Nevus Outreach? Go shopping!

We are proud to announce that the Nevus Merchandise store is now open, just in time for Christmas! Now you can get all your favorite Nevus stuff for the ones you love! Every time you buy an item from the store, you're helping to…  Continue Reading »

 

Holiday Newsletter

Our holiday newsletter has been published and is available online. There is a wonderful greeting from Mark Beckwith; a story from Anne Houseal that is sure to inspire you; great information from Lauren Young about her most recent fundraiser; and much more! You can use the links on the right to…  Continue Reading »

 

Nevus Merchandise Store Opens - Just in Time for Christmas

Just in time for Christmas, we are proud to announce that the Nevus Merchandise store has gone live, and is now on the web ready to take your order. Now you can get all your favorite Nevus stuff for the ones you love!

Did we say “Just in time for Christmas”? We sure did! Here’s…  Continue Reading »

 

What a Year

Holiday greetings to everyone within sight of these words! As I write, it’s coming up on Thanksgiving and I am blogging on our web site about all the various facets of Nevus Outreach I am thankful for. Hooray for all those people: Families, Doctors, Scientists, Staff, Volunteers, and Supporters! There is no doubt that we would not be what we are without them. Without … you.  Continue Reading »

 

Simply Fabulous

Three grizzly bears in Alaska

By Anne Houseal

Greetings! I am Anne Houseal, the new Board Chair for Nevus Outreach. For 26 years, I served in the United States Air Force, primarily in the field of Logistics. I retired in 2009 and moved with my family to Alaska, The Last Frontier…  Continue Reading »

 

Leo's Double Digit Birthday

Happy Birthday to Leo Gordon

By Lauren Young

My son Leo Gordon was born at Mount Sinai Hospital on Halloween 2004 in New York City with a very large – and very lumpy – nevus on his back…  Continue Reading »

 

Support Nevus Outreach through Amazon.com

Shop at Amazon.com through the Nevus Outreach gateway

Do your holiday shopping through our gateway at nevus.org, and 4% of your purchase will go to Nevus Outreach!

That’s 8 times more than Amazon Smile. Please visit the nevus.org homepage and click the Amazon banner to access the gateway, or click here.  Continue Reading »

 

Thanks to our Angels

Outreach Angels give automatic recurring gifts to Nevus Outreach and provide valuable funding for everything from phone bills to medical research…  Continue Reading »

 

Celebrating 17 Great Years!

Mark Beckwith and Kathy Stewart with their daughter First Nevus Outreach conference First regional gathering

1997

  • Nevus Outreach founded
  • Granted 501(c)(3) status
  • First office - Lansing Michigan
  • nevus.org web site created

1998

  • First conference - Orlando
  • First research grant awarded
  • Oklahoma office established
  • Toll-free hotline set up
  • Nevus registry set up

1999

 

Nevus Talk

People from all over the world are talking about Nevus Outreach and how it has changed their lives. Their comments warm our hearts. Our thanks to dedicated volunteer (and nevus mom!) Kristine McKewen for helping us pull all these together.

 


 

When my daughter was born, Nevus…  Continue Reading »

 

Learning by Doing

Sometimes the only way you learn something is by doing it.  Sounds simple enough, but sometimes doing it can get a long way from simple.  Take a Nevus Conference, for instance.  Continue Reading »

 

Communication!

By Taylor Scott, Nevus Outreach Executive Administrator

Taylor Scott, Nevus Outreach Executive AdministratorThis is the time of year when we work extra hard to make ends meet. At Nevus Outreach we want to be good stewards of your donations supporting what we do. One thing that costs a lot is communicating with everyone.

Did you know that for our…  Continue Reading »

 

Connecting the Dots

By Nevus Outreach Executive Director, Mark Beckwith

Mark Beckwith, Nevus Outreach Executive DirectorThe phrase “connecting the dots” is usually applied to a situation where you have a bunch of things laid out in front of you and you’re trying to figure out what their connections are, or what they could be, and consequently,…  Continue Reading »

 

Grassroots Fundraiser Campaign

Matching Opportunity

Friends of Gavin Michael Bailey, who died in 2013 at the age of 1 from complications of Neurocutaneous Melanocytosis, are challenging the people of Nevus Outreach to raise $20,000 by the end of February 2014…  Continue Reading »

 

International Expert Meeting

Expert Meeting Chair Heather Etchevers with Mark Beckwith of Nevus OutreachOn September 28-30, over 100 people interested in CMN and NCM gathered in France from around the world to report results and observations, stimulate discussion, foster collaboration, and enable caregivers to apply the most current findings in their practice…  Continue Reading »

 

Registration is Now Open

We are pleased to announce that registration is open for the 9th Nevus Conference and Family Reunion to be held in Westlake, Texas on July 2-5, 2014.  The conference has become a tradition for many families from all over the United States and beyond.  Continue Reading »

 

Conference Schedule Highlights

This year's schedule will feature great Keynote Speakers as well as experts in dermatology, neurology and surgery. Read more on our Schedule Highlights page and watch for full schedule information coming soon!  Continue Reading »

 

Holiday Shopping at Amazon

Did you know that if you go to Amazon from nevus.org, Amazon will donate a percentage of your purchase to Nevus Outreach? It’s true. Over the years, Amazon has donated $8762 to Nevus Outreach, because people from Nevus Outreach have purchased $219,050 worth of stuff at Amazon…  Continue Reading »

 

Congenital Nevus Disorders Tissue Bank

We are pleased to announce that the tissue bank we have worked to coordinate for many years has been created, and is now receiving tissue samples.  Our friends at Children's Hospital of Pittsburgh, Drs. Miguel Reyes-Múgica and Cláudia Salgado have asked us to spread the word.  Continue Reading »

 

CMN and Itching Study Announced

Over many years connecting people together who are affected by congenital melanocytic nevi (CMN), many people have noticed what they think might be a connection between CMN and itching. Our friends at Phoenix Children's Hospital, Dr. Harper Price and Dr. Judy O'Haver, have begun a study to learn more about this.  Continue Reading »

 

Gifted Hands

Nevus Outreach families know Bruce Bauer, MD, as the surgeon who removes more congenital melanocytic nevi (CMN) than anyone else anywhere. But Bauer also cares for children, as well as adults, with congenital and acquired ear deformities, cleft lip and palate, craniofacial anomalies, and vascular lesions. He is, in fact, one of the most versatile and respected cranial reconstructive plastic surgeons in the world. Curiously, he traces the beginning of his skills as a surgeon to when he was growing up on Long Island.  Continue Reading »

 

Aftermath

2013 Freewheel is now a memory. As of this writing the total stands at 106% of the goal. This means all $26,000 of the match will come through, so the total for the 2013 Oklahoma Freewheel fundraiser sits currently at $39,767 (will you be the one to put it over $40K?). This warms our hearts here in the Nevus Outreach office.  Continue Reading »

 

Climbing a Hill

A steep hill is no deterrent for Taylor Scott. While many take to walking their bikes up the hill, Taylor continues on. Even though Mark talks about Taylor being lazy on these treks, Mark is no where to be seen behind Taylor as he continues the intense hill climb.  Continue Reading »

 

Oklahoma Freewheel Comprehensive Index

The Travelbloguer: On Freewheel Thursday Update

Today I thought we would give you a little treat. This video will give you a little insight into our daily routine here on Freewheel. It starts early, and ends early in the evening, so we can start again early the next morning…  Continue Reading »

 

Answering More OK Freewheel Questions

For the first time on video together, Taylor and Mark join to answer more questions about the Oklahoma Freewheel.

The Oklahoma Freewheel has been running for 35 years, and with a 1,000 rider limit, it's a big deal. In seven days, Mark and Taylor will bicycle 509 miles across the state…  Continue Reading »

 

The Home Stretch

It has been a very fruitful weekend where we more than doubled the donations to our crazy bicycle fundraiser! We send out a big “Thank you!” to everyone who has donated so far. At this point there are exactly 50 donations and pledges.  Continue Reading »

 

Keeping Kids Safe

Harper Price, MD, pediatric dermatologist at Phoenix Children’s Hospital, in Arizona, cares for children with a range of genetic and congenital skin conditions including large congenital melanocytic nevi (CMN). One central focus of her caregiving role relates to keeping her kids safe in the sun.  Continue Reading »

 

Taylor Scott Asks for Support in Raising Funds for Nevus Outreach

Taylor Scott has taken time to respond to Mark Beckwith's comments from his earlier videos. Taylor says he isn't worried about keeping up with Mark in the Oklahoma Freewheel; after all, he IS less than half Mark's age…  Continue Reading »

 

Taylor Scott Talks About Oklahoma Freewheel

In this short video, Nevus Outreach Executive Administrator Taylor Scott describes the upcoming Oklahoma Freewheel event, and preparations for it, in some detail. He will be riding his bicycle across the state along with his boss, Nevus Outreach CEO Mark Beckwith, in a little over two weeks. Their goal is to raise $13,000 in pledges which will be matched by a very supportive donor and that donor's employer, for a total raised for the event of $39,000.00.  Continue Reading »

 

2014 Oklahoma Freewheel Fundraiser

We have some great news for everybody! Here is an easy opportunity to help keep Nevus Outreach moving forward on its ambitious goal of improving the lives of people everywhere affected by large congenital melanocytic nevi.  Continue Reading »

 

Raising Awareness Around the World

Mark Beckwith, Megan Stewart, and Kathy Stewart

Mark Beckwith, Megan Stewart, and Kathy Stewart

By Patricia McAdams, Staff Writer, Nevus Outreach

Identifying the best ways to raise awareness about a rare disorder such as congenital melanocytic nevi (CMN) has been a learning curve for players everywhere…  Continue Reading »

 

Jodi’s Epic Adventure:Climbing Mount Kilimanjaro to Raise Money for Research

Group photo of hikers
Hiking tents with mountain in the background
Posing at Uhuru Peak

“It’s not the mountain we conquer — but ourselves.”
Sir Edmund Hillary

First ascent of Mount Everest,
the world’s highest peak, in 1953.

Endurance

By midnight on October 10, 2011, the temperature had plummeted to a brutal minus 40 degrees and ice was…  Continue Reading »

 

Be a Part of the Photo Exhibit

Nevus Outreach is seeking people with nevi to be a part of an exhibit by Positive Exposure's award-winning photographer Rick Guidotti.  Continue Reading »

 

Nevus Outreach Joins Patient Groups Around the World to Bring Recognition to Rare Disease

BARTLESVILLE, OK – February 28, 2013, Nevus Outreach joins the European Organization for Rare Diseases (EURORDIS), the National Organization for Rare Disorders (NORD) and people around the world in celebrating the sixth annual Rare Disease Day…  Continue Reading »

 

Nevus Outreach Forms Alliance with Positive Exposure

Nevus Outreach is pleased to announce that New York-based award winning fashion photographer Rick Guidotti of Positive Exposure will capture images of people with congenital melanocytic nevi (CMN) for an artistic exhibit to premiere at the International Expert Meeting in Marseille France on September 28, 2013.  “The project attempts to re-define beauty using people with nevi,”according to Mark Beckwith, CEO of Nevus Outreach.  Continue Reading »

 

The Moms’ Meeting: Sharing Stories of Success

Two mothers smile as they hold their children with nevus

By Patricia McAdams, Staff Writer, Nevus Outreach

A roomful of moms gathered during the 2012 Nevus Outreach Conference to share stories and bounce around ideas for raising happy, confident children…  Continue Reading »

 

Adults with a Nevus and Parents

At the 2012 Nevus Outreach Conference, a session was held that allowed parents to meet informally with adults with a nevus (AWNs) in a small and intimate setting. This session was led by Megan Fields, herself an adult with a nevus. This session evolved into one of the most emotional and therapeutic gatherings of the Conference. It allowed people to speak with one another about the first person experience of having a congenital melanocytic nevus (CMN) — something few others would understand.  Continue Reading »

 

Real Life Issues for Parents

Sharing resources and tapping the collective wisdom within Nevus families is a powerful reason for attending the biennial Conference and this session was no disappointment. Hurwitz started the meeting by offering three valuable handouts to families.  Continue Reading »

 

Save the Date! Nevus Conference 2014

The Ninth Nevus Outreach Conference and Reunion will be held July 2-5 at the Marriott Solana hotel in Westlake Texas. Registration is now open. Watch the Nevus Outreach web site for details.

As with every Nevus Outreach conference, plan to arrive early and stay late! If you’ve never been to…  Continue Reading »

 

Children and Teens with Facial Differences at High Risk of Experiencing Negative Social Behavior

“Worries about other people’s reaction are one of the most frequently expressed concerns of parents of children with facial differences. These concerns are also an important factor in the decision for plastic surgery,” says Ornella Masnari, a psychologist and PhD student at University Children’s Hospital in Zurich, Switzerland. Regrettably, up to now, there has been little research in this field. Therefore, Masnari and her colleagues thought, “Let’s do our own study.”  Continue Reading »

 

Nevus Outreach News Archives

Nevus Outreach archived news articles.  Continue Reading »

 

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