Conference 2018 Sessions and Speakers

 

The Nevus Outreach 2018 International Conference and Reunion has something for everyone! A detailed conference schedule will be available later this spring, but for now, check out the sessions and activities below. For the past several conferences, attendees have had the opportunity to earn their conference registration fees by raising funds for Nevus Outreach. If you raise $1000, you earn one adult or teen registration. $500 will earn a child or kid registration. (Please note: both the IRS and the AFP Code of Ethical Principals and Standards don’t allow you to donate to your own fundraiser.) Fundraisers must be completed by April 30 to apply to the 2018 conference.

If you want to hold a grassroots fundraiser, click here. There is also financial aid available to attend the conference. If you would like to see if you qualify to apply for financial aid, please visit our Financial Aid page.

Early bird registration is from Feb.1-Feb.28. Click the registration link on the website and follow the instructions. We hope to see you there!

Conference sponsors include:

The Morgan Family Foundation

The Million Dollar Round Table Foundation

Susan Finn

Leo Gordon's Bar Mitzvah Fundraising Event

Register for the Conference

Life with a Nevus Sessions

A team of Psychologists will be working together to present sessions and facilitate small groups addressing the psycho-social issues of living with a nevus. The team includes:

Team Leader

Shawn Reynolds, Ph. D. – Registered Psychologist (nevus dad)

Members

Karen Mallin, Psy.D – Clinical Psychologist with specialty in Psychodermatology
Allison Hurwitz, LPC, LSW, MSW, MA, ATR – Licensed Counselor and Registered Art Therapist (nevus aunt)
Andrea Bischoff, Psy.D – Clinical Psychologist (nevus mom)
Ornella Masnari, Ph.D. (via web) – Presenting research findings


Plenary Session/Team Presentation

Parenting to Build Resilience in Children with a Nevus:
Ideas from a Psychologist and Father.

Life with a Nevus


Small Group Sessions

Moms
Moms discuss their specific issues and challenges.

Dads
Dads discuss their specific issues and challenges.

Real Life Issues for Nevus Kids
Younger kids talk about living with their nevus.

Real Life Issues for Nevus Teens
Older kids talk about living with their nevus.

Real Life Issues for Siblings
Michaela and Kateri Houser join the team in this session for siblings.


Educational Sessions

Nevus 101, the Skin
Harper Price, MD, Pediatric Dermatologist

Surgical Removal
Bruce Bauer, MD and Sara Dickie, MD, Plastic Surgeons

Neurological Implications of a Nevus
Yasmin Khakoo, MD, Neurologist

Gavin Bailey Tissue Repository and Research Updates
Miguel Reyes–Múgica, MD; Cláudia Salgado, MD, Ph.D. (AP/CP); Randi Silver, Ph.D.; James Barkovich, MD; Veronica Kinsler, MA, MB, BChir, FRSPCH, PH. D; Heather Etchevers, Ph. D.

Experts Panel
Q&A with experts from all disciplines.


Other Sessions

NCM Issues
Families dealing with NCM meet with Dr. Khakoo.

Adults with Nevus (AWN) Panel Discussion
Q&A for parents to ask the panel.

Adults with Nevus (AWN) Speed Chat with Parents
Parents and AWNs meet in small chat groups.

Breakfast Talk
Leo Gordon (13) Growing Up with a Nevus.

Breakfast Talk
Matthew Rogers and Cortlyn van Deutch, young adult nevus owners, talk about sports and a nevus.

Conference Veterans
Facebook as outreach. How to best use social media to serve people.

Conference Veterans
New parents welcome packet. How to make this resource the best it can be.

Conference Veterans
Option to mentor a new family at the conference.

Adults with Nevus Task Force
AWNs talk about how they can impact the future of Nevus Outreach.

AWN Men with Boys
Gender-specific topics discussed.

AWN Women with Girls
Gender-specific topics discussed.

Siblings and Parents
While the nevus owners are in a session, parents, and siblings have an activity together.

Grandparents (and other Family Members)
Specific issues for extended family members.

Memorial Celebration
A time to remember those who have lost their lives due to complications from their nevus or related disorders.

Activities

Kids
  • Firezone
  • Legoland
Teens
  • Master Mind Escape Room
  • Gameworks or Level 257 (TBD)
  • Young Leaders: Teens 16+ through young adult discuss impacting the future of Nevus Outreach.
Kids and Teens
  • Soccer/Sports Camp
  • Art Project
  • Medieval Times
  • LCC Comfort Dogs
Other activities
  • Master Mind Escape Room: Adults with Nevus.
  • Talent Show: Kids/Teens/Adults.
  • Yoga: Teens and Adults.
  • Guided Meditation: Teens and Adults.
  • Karaoke: Kids/Teens/Adults (at the dinner dance).
  • Silent Auction for Nevus Outreach: Bring a “suitcase packable” item to auction at the conference (optional).
  • Live Auction for Nevus Outreach: Several “large” items (like trips, jewelry, and artwork) will be auctioned at the Friday night festivities.
  • Group Photo
  • 20th Anniversary Celebration

Evening Events

  • 4th of July Events (Wednesday)
  • Pizza/Pool Party (Thursday)
  • Pasta Night and Talent Show (Friday)
  • Dinner Dance (Saturday)

Consultations and Total Body Photography

Experts attending the conference as speakers, also have traditionally offered individual consultations for parents, nevus owners and families. When you register for the conference, please indicate whether you would be interested in a consultation (check all that apply) so we make sure to have enough time slots available. You will sign up for your time once you get to the conference.

Fundraisers

For the past several conferences, attendees have had the opportunity to earn their conference registration fees by raising funds for Nevus Outreach. If you raise $1000, you earn one adult or teen registration. $500 will earn a child or kid registration. (Please note: both the IRS and the AFP Code of Ethical Principals and Standards don’t allow you to donate to your own fundraiser.) Fundraisers must be completed by April 30 to apply to the 2018 conference.

Register for the Conference

Teenage nevus owner playing in the snow

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