We are proud to announce that the Nevus Merchandise store is now open, just in time for Christmas! Now you can get all your favorite Nevus stuff for the ones you love! Every time you buy an item from the store, you're helping to support Nevus Outreach.
Holiday greetings to everyone within sight of these words! As I write, it’s coming up on Thanksgiving and I am blogging on our web site about all the various facets of Nevus Outreach I am thankful for. Hooray for all those people: Families, Doctors, Scientists, Staff, Volunteers, and Supporters! There is no doubt that we would not be what we are without them. Without … you.
Greetings! I am Anne Houseal, the new Board Chair for Nevus Outreach. For 26 years, I served in the United States Air Force, primarily in the field of Logistics. I retired in 2009 and moved with my family to Alaska, The Last Frontier. My military career allowed me to serve a diverse population worldwide.
My son Leo Gordon was born at Mount Sinai Hospital on Halloween 2004 in New York City with a very large – and very lumpy – nevus on his back. It was no trick – and definitely not a treat – to visit three different hospitals during his first four days on earth.
Outreach Angels give automatic recurring gifts to Nevus Outreach and provide valuable funding for everything from phone bills to medical research. Their incremental donations transfer across automatically, quietly ensuring we will make a bigger and bigger difference in the lives of people affected by large nevi.
Did you know that for our last conference, we mailed out over 1400 Registration Packets, but only one family registered by sending a check in the mail? Seriously. That cost a lot! Everyone else registered on the web site using credit cards and bank drafts. Does that mean we shouldn’t be sending stuff out by mail any more?
The phrase “connecting the dots” is usually applied to a situation where you have a bunch of things laid out in front of you and you’re trying to figure out what their connections are, or what they could be, and consequently, your best guess at what they should be. I have on previous occasions remarked about how connecting the dots seems to happen with regularity at Nevus Outreach, and I’m not making a silly joke about large congenital melanocytic nevi (CMN).
Friends of Gavin Michael Bailey, who died in 2013 at the age of 1 from complications of Neurocutaneous Melanocytosis, are challenging the people of Nevus Outreach to raise $20,000 by the end of February 2014. Each dollar raised will be matched, up to a total of $20,000, resulting in a fund of $40,000. This money will be used to support ongoing Tissue Bank activities at Nevus Outreach.
We are pleased to announce that registration is open for the 9th Nevus Conference and Family Reunion to be held in Westlake, Texas on July 2-5, 2014. The conference has become a tradition for many families from all over the United States and beyond.