Who are these people anyway?
Nevus Outreach was started by people just like you who are facing life with a very rare condition. This section is meant to give you a quick overview of large and giant congenital nevi, their risks, related conditions, and treatment options.
We understand what you are going through. Hundreds of us have been through it, too. Nevus Outreach was formed in 1997 by three families of children with nevi who all recounted the same stories from the delivery room - stories about "doctors who gasped," stories about how "nobody could tell us what it was," stories about "medical articles that said our children would not live to be two years old." Sounding familiar? We started Nevus Outreach so that one day doctors would be better informed and patients would get better information.
"When my daughter was born, the doctors couldn't even tell us what she had"
"What do I like most about Nevus Outreach? Knowing there are others out there"
