It is the goal at Nevus Outreach, Inc. to offer support to those with large nevi, as well as their families and caregivers. This website is just the beginning, we also offer a toll-free hotline, an online support group, literature, and our ever-popular Nevus Outreach International Conference. Visit the pages below so that we may help you!
If you are the parent of a baby who was born with a large nevus, you have come to the right place! We are here to give you the answers and the support you need....(more)
The Nevus Outreach toll-free Lifeline is an immediate link to a real person when you have urgent questions. Please call the lifeline whenever you need an immediate response. We want to hear from you....(more)
The Nevus Outreach Support Group is like a big round-table discussion, only it takes place via email! All the people in the group get all the emails addressed to the group - so when someone asks a question and someone else has an answer, the communication takes place in an open forum, allowing others to chime in with related questions or experiences....(more)
Our organization hosts the International Nevus Outreach Conference every two years. Since the first gathering in 1998, people with a nevus, family members, psychosocial experts and medical professionals from around the world have attended. These meetings offer a chance for people to forge relationships and get current medical information....(more)
The Nevus Outreach Registry, the International Registry of large congenital melanocytic nevi and neurocutaneous melanocytosis (melanosis), is the only registry of its kind for large nevi and provides a growing source of statistical information about this rare condition....(more)
One of the best ways that Nevus Outreach can offer support to people with nevi is to connect them with people who know first-hand what they are going through. Our conferences are a great place to meet other people with nevi, but they only happen every other year.
Since the fall of 2006, nevus families and other supporters have been organizing regional gatherings throughout the country. These events are an excellent way for people to network between conferences, and for people who cannot attend conferences to meet others with a nevus....(more)
Every dot on this map represents a person we are aware of who has a large congenital melanocytic nevus (CMN). Registry and non-registry members are both represented here. If you have not filled out our registry, please take a few minutes to do so. We need all the information we can get as we serach for a cure!...(more)
Nevus Outreach, Inc. is one of the largest, if not the largest, patient advocacy groups for people with large congenital melanocytic nevi (CMN) in the world. We work tirelessly to promote knowledge and understanding, advance research and provide a network of support for people with CMN....(more)
Thank you for creating this support group. It is helping us get through a very difficult time in our lives.