Nevus Outreach, Inc., The association for Large Nevi and related disorders.
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Nevus Outreach Familes in the Spotlight


The Rexroat Family

Michael, Melissa, and Aiden Rexroat

Rexroat Family

Family: Michael & Melissa Rexroat, Aiden 15 months
Location: Corona, California

Our son Aiden, was born on November 1st, 2010 with a giant nevus located on his chest, back, and arm. We were scared, confused, and badly misinformed about his condition. After seeing some specialists, we decided that the best option for our son would be to remove his nevus through plastic surgery. This was a tough decision to make but we felt that this was the best choice.  A few months after Aiden was born,  we saw Megan Fields post on Facebook that there was going to be a Nevus gathering in Arizona and this was just what we needed. The only person we had talked to with a nevus was Megan, so we were excited to meet other families and not feel so alone. That trip to Arizona changed our lives. Not only did we make lifelong friends that day but we were informed about the Nevus Outreach support group and Dr. Bauer. We had been talking to a plastic surgeon in our area but after hearing about what the process was supposed to be like and seeing a child with expanders, we knew we didn't have the right doctor.  It was so refreshing to hear that there was an expert out there who had been doing this for a very long time. We were weary about traveling to Chicago but after speaking with Dr. Bauer, we knew that this was the path we were meant to take.

We started his surgery in August, 2011 with tissue expansion. The round went fairly smoothly and the results were amazing. We were supposed to start round two in March, 2012 but after his second surgery, Aiden developed a bad infection and we are postponed to July. Despite the setback, we are hoping to remove the remaining of his nevus in this next round. You can follow his journey on our blog at www.aidensamazinglife.blogspot.com

We are so thankful for Nevus Outreach. Without them, we would still be scared, confused, and badly misinformed. Instead we are educated and happy that Aiden never has to feel alone with his condition.  We have made several new friends and the support is so wonderful. We are really excited to be attending our first Nevus Conference this year to learn more knowledge about his condition, meet new friends, and provide support to other families!

 

More Spotlight Families

Pink Family

Hi, I'm Rita, nevus owner for 66 years. I was born in a small town in Indiana with a giant congenital melanocytic nevus covering more than 90% of my body. My parents quickly brought me to New York where I was raised in a Catholic children's convalescent home, which afforded me the necessary medical treatment needed. (read more)

Kramer Family

Christmas Eve morning 2009 we unknowingly entered this wonderful Nevus Outreach family with the birth of our daughter, Addyson. She was a healthy, beautiful baby with a birthmark covering over half of her back, her left shoulder and upper chest, upper left arm, entire neck, the left side of her face and left ear, and about 75% of her head. She also had 19 satellites (which in her two years has increased to a few hundred). (read more)

Nagel Family

We entered the Nevus Outreach family almost 2 years ago, shortly after our son Sullivan (“Sully”) was born with a giant cape nevus covering his entire back with minimal wrapping bilaterally onto his sides. He was born with a few satellites which have now increased to a few hundred. Being from a rural area in South Dakota, the knowledge of our local medical community was minimal to say the least. I quickly turned to the internet and found Nevus Outreach within days after Sully’s birth. (read more)

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