Nevus Outreach, Inc., The association for Large Nevi and related disorders.
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Other Kinds of Nevi


Nevus Outreach deals specifically with large congenital melanocytic nevi. Other types of Nevi are outside our range of expertise. However, we promote the idea of connecting people with any type of nevi. We have provided the links below to help you in your search for information. If you know of a helpful link for types of nevi other than large congenital melanocytic nevi, please send us an email so that we can add it to this list. Email:

Nevus Outreach is not associated with nor responsible for any of the groups or links listed on this page.

Becker's Nevus

Becker's nevus (also known as "Becker's melanosis," "Becker's pigmentary hamartoma," "Nevoid melanosis," and "Pigmented hairy epidermal nevus") is a skin disorder predominantly affecting males. The nevus generally first appears as an irregular pigmentation (melanosis or hyperpigmentation) on the torso or upper arm (though other areas of the body can be affected), and gradually enlarges irregularly, becoming thickened and often hairy (hypertrichosis).

There is an email group hosted at Yahoo! for discussing Becker's Nevi. For more information about it please visit: http://health.groups.yahoo.com/group/Beckers_nevus/

Additionally, these people with Beckers' Nevus have indicated they would like to be contacted by others with their disorder. If you would like your name added to this list please email us at indicating you would like your name added to this list. Thanks.

Joe Fried -
Kostas Meglis -
John Henning Aarsheim Paulsen -
Steve Stone -
Karrie Thorne -
Scott Vermilyea -

Blue Nevus

Blue nevus (also known as "Blue neuronevus," "Dermal melanocytoma," and "Nevus bleu") is a type of melanocytic nevus. It is usually described as non-cancerous, but can be malignant. More information on Blue Nevi can be found here.

Blue Rubber Nevus

Blue rubber bleb nevus syndrome (or "BRBNS", or "blue rubber bleb syndrome, or "blue rubber-bleb nevus", or "Bean syndrome") is a rare disorder that consists mainly of abnormal blood vessels affecting the gastrointestinal tract. More information about Blue Rubber Nevi can be found here.

Epidermal Nevus Syndrome

Epidermal nevus syndrome (also known as "Feuerstein and Mims syndrome," and "Solomon's syndrome") was first described in 1968, and consists of extensive epidermal nevi with abnormalities of the CNS, skeleton, skin, cardiovascular system, gentiourinary system, and eyes. However, since the syndrome's first description, a broader concept for the "epidermal nevus" syndrome has been proposed, with at least six types being described.

There is an email group hosted at Yahoo! for discussing Epidermal Nevus Syndrome. For more information about it please visit: http://health.groups.yahoo.com/group/Epidermal_Nevus/

There is a group called Linear Epidermal Nevus Support on Facebook.

Nevus Comedonicus

Nevus comedonicus (also known as a "Comedo nevus"[1]) is characterized by closely arranged, grouped, often linear, slightly elevated papules that have at their center keratinous plugs resembling comedones. More information about Nevus Comedonicus can be found here.

Nevus Sebaceous

Nevus sebaceous (or nevus sebaceus, also known as an "Organoid nevus" and "Nevus sebaceous of Jadassohn" is a congenital, hairless plaque that typically occurs on the face or scalp. Such nevi are present at birth, affecting males and females of all races equally. The condition is named for an overgrowth of sebaceous glands in the area of the nevus. Sebaceous nevi can give rise to sebaceous carcinoma. However, the rate of such malignancies is now known to be less than was previously estimated. For this reason, excision is no longer automatically recommended.

These people with Sebaceous Nevi have indicated they would like to be contacted by others with Sebaceous Nevi. If you would like your name added to this list please email the webmaster at indicating you would like your name added to this list. Thanks.

Sonya Hall -
Gustavo Campos -
Anne Berard -
Michelle Guza -
Karen Welty -
Courtenay Rounds -
Joan McCabe -
Tina Valenti -
C. J. Sandlin -
Crystal Sandlin -

 

Nevus of Ota

Nevus of Ota is a hamartoma of dermal melanocytes. Clinically, nevus of Ota presents as a blue or gray patch on the face, which is congenital or acquired and is within the distribution of the ophthalmic and maxillary branches of the trigeminal nerve. The nevus can be unilateral or bilateral, and, in addition to skin, it may involve ocular and oral mucosal surfaces. Women are nearly five times more likely to be affected than men, and it is rare among Caucasians. Nevus of Ota may not be congenital, and may appear during puberty.

Nevus of Ito

Nevus of Ito is a dermal melanocytic condition affecting the shoulder area. It can sometimes be associated with sensory changes in the involved skin area. Very rarely does nevus of Ito become cancerous. Nevus of Ito often occurs in association with nevus of Ota in the same patient but is much less common, although the true incidence is unknown. They are most commonly found in Asian populations and appear more frequently in females. They are very uncommon in Caucasians.

Basal Cell Carcinoma Nevus Syndrome

Also known as Gorlin Syndrome, Gorlin-Goltz Syndrome, Basal Cell Nevus Syndrome, or Nevoid Basal Cell Carcinoma Syndrome, BCCNS is a rare genetic disorder that may affect all systems of the body and makes affected individuals more susceptible to various forms of cancer—especially basal cell carcinoma, a form of skin cancer. For more general information about the syndrome, click here.

Joan McCabe -

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Becker's nevus
Example of a Becker's Nevus

Blue rubber nevus
Example of a Blue Rubber Nevus

Sebaceous Nevus
Example of a Nevus Sebaceous (original image here)

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