Nevus Outreach Support Group
Support From People Who Know What You're Going Through
Connect with people who have been there and understand the implications of having a large nevus.
What is the Nevus Outreach Support Group?
The Nevus Outreach Support Group is like a big round-table discussion, only it takes place via email! All the people in the group get all the emails addressed to the group - so when someone asks a question and someone else has an answer, all communication takes place in an open forum, allowing others to chime in with related questions or related experiences.
This is the one place in the world where you are going to find so many other people who understand what you're going through (748 members on 2/1/2011). The people in this group understand what life with a large nevus is like.
How do I join the Nevus Outreach Support Group?
The Nevus Outreach staff can add anyone to the group at any time! Just fill out this form and we'll add you to the group. Or, since the group is Yahoo!Groups-based — if you're comfortable with the Yahoo! interface, feel free to sign yourself up to the Nevus Outreach Support Group. But, please note: the Yahoo! Groups interface is not for the faint-hearted. If you go there and get frustrated, come back here and fill out the form and we'll get you all taken care of. Or call us on the phone. This group is an amazing resource, and we want to do whatever we can to help you become a part of it!
I'm addicted to Facebook. What do I do now?
We have a large group on Facebook too. There are quite a number of groups when you look for "nevus" so click on the one that says "Nevus Outreach, Inc." and you'll be in the big group we run with over 600 members. Visit the Nevus Outreach Facebook page.
Are there Support Groups in my area?
A large congenital melanocytic nevus is a rare condition, and as such, there are not likely to be many (or any) people in your hometown who share the condition, making local support groups not practical. Still, it is our goal to bring people with large nevi together, and we strive to do that any way possible. Through our biennial conferences, the Nevus Outreach Support Group and Facebook, friendships are forged that offer a lifetime of emotional support. Become a part of the Nevus Outreach Community, the largest nevus support group we know of!