So we get home and immediately Megan gets hired to be in a movie that stars Ben Affleck. I'm not sure how I feel about it. The casting call said something like "looking for a child with a neurological disorder." I sent them some stuff Monday, they interviewed Megan Tuesday, hired her Wednesday and did the shoot Thursday.
"If anybody needs h Read more...
Today was mostly uneventful. Megan complained of a splitting headache, quickly controlled by a Lortab, and there were some fun histrionics with specialists.
All things considered, the best part was washing my girl's hair. She truly could not understand that her incision would not be detectable. She looks great! This made her very happ Read more...
The Neurosurgery fellow came through this morning, at more like 6:30am, to check on Megan. He said "Let's see about some Physical Therapy for Megan." I guess he didn't get the memo :) I told him PT had already signed off on her, so he says "in that case, from a neurosurgical standpoint I don't see why... we can't release her today." I have to remind myself it's onl Read more...
Friday morning and all is well. Yesterday, Megan slept a lot and got up to use the bathroom a lot. In the late afternoon, her eyes flew open and you could tell she had just quickly transitioned from snoozy-sicksville to "ready to go" mode. Because of all her trips to the bathroom (don't know how else to say that) she was good at getting in and out Read more...
Good morning. I'll start by saying everything is fine, and I will publish this sentence as is while I write this blog entry in more depth. It's been a long 24 hours. More ASAP.
So where were we? Last blog entry found us surprised that Megan's surgery was already finished. It was a sort of hurry-up-and-wait all afternoon, as she Read more...
Okay, so I forgot to publish that little note with the "Sunset-Over-The-Caribbean" photo last night and probably made a few hearts leap. Sorry 'bout that.
Today is Wednesday. We got Megan here early - 5:45am - to have the cardio workup which went fine - no trace of that old VSD she may have had at one time (cardiologists here skeptical that she w Read more...
D'oh - I'm a blogdope! Wrote this last night and only published it just now. Ach. Megan's surgery is nearly finished and everything is going FINE. More in a bit.
We have an early morning tomorrow. Because they're letting us do the EKG in the morning (instead of making us go i Read more...
The trip to the surgeon's office for pre-surgery consultation was a long one. He finally saw us fully two hours after our appointed time. I'm sure national healthcare will fix this.
(That's an attempt at light humor, FYI.)
Data bits:
Neurologist will wire her up with electrodes to monitor the seizure activity while they poke Read more...
This is maddening. Megan was born with a congenital heart defect (a VSD) that caused her heart to stop on the operating table at age 2 months. We reported this to the surgeon today diligently.
Just got a call Read more...
Sunday after church we piled into the minivan and headed to Memphis. On this trip, Megan is to have a PET scan to be digitally superimposed over the scans from the last trip to Memphis, to make a three-dimensional rotatable mode Read more...
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