New Nevus? Need Answers?
If you are the parent of a baby who was born with looks like a large mole or a large birthmark, it is very possible that your child was born with a nevus and you have come to the right place! We are here to give you the answers and the support you need.
We have been in your shoes...
The co-founders of Nevus Outreach, Inc. created this organization because they went through what you are now going through, and experienced first hand the stress that misinformation can create. When Mark Beckwith, one of the co-founders of Nevus Outreach, was blessed with a beautiful baby girl with a large nevus, the doctor told him that the condition was terminal and nothing could be done. Well over a decade later, Mark's daughter is a healthy and happy teenager. Obviously, the doctor was wrong, and sadly, many new parents of children with large nevus are told the same frightening misinformation.
Sometimes Doctors Don't Know What They are Talking About
We are not saying you should disregard what your doctor tells you, but we want you to know that when you are dealing with a rare condition like a large pigmented nevus, there is a very good chance that your doctor has no experience with it. It is important that you seek out current and accurate information. Don't take your doctor's word for it, don't even take our word for it, do the research, talk to others with nevi and learn everything you can.
You have found what we hope will be an invaluable resource, but please don't just read the pages of this website and stop there, get involved in the nevus community, attend the Nevus Outreach Conferences and Nevus Gatherings when possible, and definitely join the Online Nevus Outreach Support Group.
The very first questions that you have about large nevi are probably centered around the health of your newborn baby. You probably had no idea that a nevus was present before birth, and most likely had never even heard of a large or giant nevus. We have prepared a section on this website that is dedicated to providing you with basic information about large congenital melanocytic nevi, starting with the basic question: What is CMN? Click the links below to learn general information about large nevi.
- What is a Large Congenital Melanocytic Nevus (CMN)?
- Frequently Asked Questions about CMN
- Medical Challenges for those with CMN
- CMN Glossary
- Science and Research
- Treatment Options
- Is Nevus Removal Possible?
Life with a Large Nevus
After your medical questions are answered, you are going to start imagining what life for your child is going to be like. Will people stare? Are they going to pick on and make fun of your child? How can you make your child's life easier and more "normal?"
We are not going to tell you life with a large nevus is all laughs and giggles. There are hardships and challenges that go along with having a large nevus. We can, however, assure you that we have met many, many people who not only lead happy, fulfilling lives, but who might even tell you that they are very happy to be born with "spots."
Recently, some young people with CMN put together a video. These gorgeous young people from all over the world wanted to show you that it's going to be okay. You've got this!
A World of Support
The absolute best thing you can do for yourself or for your child with a large nevus is to get the amazing and loving support of the nevus community. It is important that you know you are not alone. The Nevus Outreach Support Group is a resource that provides answers to questions, advice for situations and comfort and solace that you can't find elsewhere.
To New Parents of a Child With a Nevus: Keeping Vigil
The birth of our baby is among the most sacred and joyous occasions that any of us who are parents will ever experience. But when our little one arrives unexpectedly with a stunning congenital melanocytic nevus (CMN), some of our euphoria may be swallowed up by unspeakable sadness and fear — and so many questions. (more)
When my daughter was born, Nevus Outreach meant the world to us. My family was able to educate themselves and others about her condition.
Parents who have babies with nevi now are really blessed to have this site and others to educate themselves and get support - it would have been such a help for us back then.