Nevus Outreach, Inc., The association for Large Nevi and related disorders.
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The Mission of Nevus Outreach, Inc.


Nevus Outreach is dedicated to bringing awareness, providing support, and working toward cures for people affected by congenital melanocytic nevi and related disorders.

 

Awareness

Improve awareness and education about large congenital melanocytic nevi (CMN) and neurocutaneous melanocytosis (melanosis) (NCM) including:

  • Producing literature on CMN and NCM, using content approved by our Professional Advisory Committee.
  • Distributing this educational material as widely as possible to doctors, patients and the public using direct mail, in-person handouts and the Internet.

Support

Provide support for people with CMN and NCM, including:

  • Operating a vital link to new parents and others through our 24/7 “lifeline” telephone number.
  • Offering support for psychological issues and the everyday problems specific to people with CMN and NCM.
  • Holding bi-annual conferences which bring people affected by CMN and NCM together with each other and with medical and psychosocial professionals.
  • Providing services such as email based discussion groups and online publications to help those affected by CMN and NCM to interact and share experiences and insight with each other.
  • Promoting social and psychological research and programs which benefit people affected by CMN and NCM.
  • Helping people with CMN and NCM who require medical treatment to obtain it.
  • Making up-to-date information about current research and medical discoveries available to members and other interested parties.

Treatment or Cure

Find a treatment or cure for CMN and NCM including:

A mother holding her little girl with several nevi on her face.

Thank you so much! This site has been a great help to us!!

Julie M.

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