Monday, November 24, 2014
by Mark Beckwith
It occurs to me to stop and think about all the parts of Nevus Outreach I’m thankful for this week. Of course I thought about it while driving and couldn’t do a brain dump on the spot. Now it’s past bedtime and I’m finally getting around to writing it. It will make a proper series of daily blogs before the weekend when I will be steeped in my hobby beyond any practical measure.
Today is Monday. I’ll get to different facets tomorrow, but today I would like to remember Nevus Outreach itself. Before Nevus Outreach, almost all people affected by large congenital nevi felt alone, they didn’t meet other people with nevi, and they didn’t know anyone who could relate to what they were going through. Even most of their doctors were at a loss to understand the most basic things about their disorder.
Upon this 17th anniversary year of the founding of Nevus Outreach, things have changed quite a lot for the better, for people affected by large congenital nevi. Now thousands of people all over the world know they are not alone, they know others who can relate to what they are going through, and their doctors are, for the most part, much better informed than they used to be.
Nevus Outreach has played a major part in bringing all this about. Speaking for one family affected by this rare disease, at the most basic level, I am thankful for Nevus Outreach.