Ride Brian Ride Fundraising Page

On July 5th a man and his bike will set tires to pavement for a 30 day journey from Portland, Oregon across the USA to Savannah, Georgia to raise awareness about Congenital Melanocytic Nevi and Neurocutaneous Melanocytosis, rare conditions his son succumbed to at the young age of seven.
 
Brian Stockbridge is better known in his own community of Shelton, CT and surrounding towns as “The Cheesecake Guy” for the incredible products at his shop, Stockbridge's Cheesecakes.  For the month of July Brian will take off his apron and fulfill a promise made to his late son and focus on one passion: Nevus Outreach.  His son David had a Giant Congenital Nevus - a pigmented birthmark covering a large part of his body.  This is an "orphan disease" according to the Food and Drug Administration and the National Institutes of Health - it is so rare that few doctors know anything about it, and few scientists or pharmaceutical companies have any interest in curing it.  Nevertheless it can affect one in 20,000 people.  Brian's son David died in 1997 because of a proliferation of pigment cells in his brain called Neurocutaneous Melanocytosis - a sometimes-fatal condition related to the giant birthmark on his skin.
 
The feat Brian will undertake with this 3,500 mile bike ride across the USA, will undoubtedly make the public more consciously aware of Giant Nevi and raise both awareness and much-needed funds in the process.   As Brian has said, “To celebrate my 50th year I intend to keep the promise I made to my son and honor his brave battle with his nevus…the cheesecakes can wait a month…this cannot."

For more information:

Heidi Vasseur
Nevus Outreach, Inc.
918-331-0595

http://www.nevus.org

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