Nevus Outreach, Inc., The association for Large Nevi and related disorders.
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Home > > 2016 Conference Information > 2016 Conference Schedule

2016 Conference Schedule


 

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Wednesday, June 29

TIME
EVENT
ROOM
 
3:00-6:30 pm
Registration, Info Desk, Volunteers, Merchandise
Mahogany Foyer
 
7:30 pm
Sapphire Pavilion
 
7:30-8:30 pm
Reception and Ice Cream Social
Sapphire Pavilion
 
8:30 pm
Teen Suite
5301
 
 

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Thursday, June 30

TIME
EVENT
ROOM
 
7:00-8:00 am
Breakfast
Cyan
 
7:00 am-12:00 pm
Registration
Mahogany Foyer
 
7:00 am-5:00 pm
Info Desk, Volunteers, Merchandise
Mahogany Foyer
 
8:00 am-5:00 pm
Daycare
Slate
 
8:15 am
The Basics of Congenital Nevi in the Skin
Dr. Tor Shwayder
Mahogany V, VI, and VII
Dr. Shwayder gives an overview of congenital melanocytic nevi (CMN) – we call it Nevus 101.
 
8:30-9:30 am
Kids and Teens Activity/Demonstration
Medieval Times
Sienna III
 
9:00 am-5:00 pm
Total Body Photography
Sienna IV
 
9:30 am
The Basics of Congenital Nevi in the Brain
Dr. Yasmin Khakoo
Mahogany V, VI, and VII
Dr. Khakoo talks about one of the more problematic issues that sometimes accompanies congenital melanocytic nevi – Neurocutaneous melanocytosis (NCM) which is pigment and/or pigment cells in the central nervous system.
 
9:30 am - 3 pm
Kids (6-9 year olds) leave for Pirates' Cove
West Lobby Entrance of the Hotel
 
10:30 am - 3 pm
Kids (10-12 years old) and Teens leave for GameWorks
West Lobby Entrance of the Hotel
 
10:45 am
Overcoming Fear
Ms. Jillian Hauf
Mahogany V, VI, and VII
Jillian Hauf, an adult with a large nevus, and also a Certified Firewalker and Empowerment Instructor, will share some great life-hacks for people affected by CMN.
 
12:00-1:00 pm
Lunch
Mahogany Foyer for serving; Mahogany V, VI, and VII for seating
 
1:00 pm
Adults with Nevi Speedchat
Mahogany V, VI, and VII
Patterned after “Speed Dating,” our speed-chat session will help you figure out real fast just which adults with nevi you can relate to best and might want to talk to later when you pass them in the hall or sit by the pool.
 
2:15 pm
The Gavin Bailey Tissue Repository
Dr. Miguel Reyes, Dr. Dipanjan Basu
Mahogany V, VI, and VII
Drs. Reyes and Basu describe one of the biggest developments in nevus research ever – the state of the art Nevus Outreach tissue bank with over 600 tissue samples.
 
2:00-5:30 pm
Sienna I and II
You can schedule a 10 minute appointment after you register to consult with a dermatologist, a surgeon, and a neurologist (Note that the neurologist is only available Thursday).
 
3:00-3:30 pm
Kids and Teens return from Pirates' Cove and Gameworks
TBA
 
3:30 pm
Teen Suite
5301
 
3:30 pm
Breakout: For people affected by Neurocutaneous Melanocytosis
Dr. Miguel Reyes, Dr. Yasmin Khakoo
Mahogany V, VI, and VII
NCM can be very challenging. If you are affected by NCM, you can sit and meet with others who understand the path you’re on.
 
 

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Friday, July 1

TIME
EVENT
ROOM
 
7:00-8:00 am
Breakfast
Cyan
 
7:00 am-5:00 pm
Info Desk, Volunteers, Merchandise
Mahogany Foyer
 
8:00 am-5:00 pm
Daycare
Slate
 
8:15 am
Introduction to the Therapies section
Dr. Bruce Bauer
Mahogany V, VI, and VII
Dr. Bauer is the surgeon who has treated more large nevi from more patients than any other surgeon in the world. He and Drs. Dickie and Sitzman, and nurses Hoadley and Tournell describe the basics of these processes and the decisions that accompany them.
 
8:40 am
Nevus and Body Image: The Decision for Surgery and Other Treatment Options
Dr. Sara Dickie
Mahogany V, VI, and VII
 
9:30-9:30 am
Kids and Teens Activity/Demonstration
Sienna III
 
9:00 am-5:00 pm
Total Body Photography
Sienna IV
 
9:10 am
Surgical Management of Large and Giant Congenital Melanocytic Nevi: The role of tissue expansion and the evolving “State of the Art”
Dr. Bruce Bauer
Mahogany V, VI, and VII
 
10:00 am
Discussion/Break
Mahogany V, VI, and VII
 
10:15 am
Using 3D Modeling in the Treatment of Congenital Melanocytic Nevi: Can we improve our outcomes or help families anticipate surgical results
Dr. Thomas Sitzman
Mahogany V, VI, and VII
 
10:45 am
Making it All Work: The team and coordination of care
Mim Tournell RN BSN and Susan Hoadley RN BSN
Mahogany V, VI, and VII
 
10:00 am
Kids leave for LegoLand
West Lobby Entrance of Hotel
 
10:30 am
Teens leave for Level257
West Lobby Entrance of Hotel
 
11:15 am
Discussion and Q&A
Mahogany V, VI, and VII
 
12:00-1:00 pm
Lunch
Mahogany Foyer for serving; Mahogany V, VI, and VII for seating
 
1:00 pm
Quality of Life and Psychological Adjustment
Dr. Ornella Masnari, Mr. Mark Beckwith
Mahogany V, VI, and VII
In an ongoing Nevus Outreach-funded scientific study, Dr. Masnari describes the study, what can be learned, and how you can help.
 
2:00 pm
Moms (Breakout)
Mahogany II
This is a time for moms and grammas to sit and talk. Bring Kleenex.
 
2:00 pm
Dads (Breakout)
Mahogany III
This is a time for dads and grandpas to sit and talk. Bring man-sized Kleenex.
 
2:00 pm
People with Nevi (Breakout)
Mahogany I
This is a time for people who have a nevus to sit and talk. Bring Kleenex.
 
2:00-5:30 pm
Sienna I and II
You can schedule a 10 minute appointment after you register to consult with a dermatologist, a surgeon, and a neurologist (Note that the neurologist is only available Thursday).
 
2:30 pm
Kids return from LegoLand
TBA
 
3:30 pm
Teens return from Level257
TBA
 
3:30-5 pm
Teen Suite
5301
 
5:00-7:00 pm
Pizza Party at the Pool
Cyan
 
7:30-9:30 pm
Ventriloquist
Mahogany V, VI, and VII
 
 

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Saturday, July 2

TIME
EVENT
ROOM
 
7:00-8:00 am
Breakfast
Cyan
 
7:45-8:00 am
Group Photo
TBA
 
8:00 am-3:00 pm
Info Desk, Volunteers, Merchandise
Mahogany Foyer
 
8:00 am-3:00 pm
Daycare
Slate
 
8:15 am
Gleanings from the Wise
Ms. Jillian Hauf and friends
Mahogany V, VI, and VII
Jillian Hauf assembles a panel of age- and gender-diverse friends who also have nevi, to take your questions.
 
8:30-9:30 am
Kids and Teens Activity/Demonstration - Pet Therapy
Sienna III
 
9:30 am
Kids leave for IMAX and The Streets of Woodfield Mall
West Lobby Entrance to Hotel
 
10:00 am
Teens leave for IMAX and The Streets of Woodfield Mall
West Lobby Entrance to Hotel
 
10:00 am
Mahogany V, VI, and VII
 
11:15 am
Keynote – Vision for the Future
Dr. Sven Krengel
Mahogany V, VI, and VII
Dr. Krengel, a favorite at Nevus Outreach conferences since 2006 and one of the most well-rounded clinicians who cares for patients with CMN in the world, shares his thoughts about what the future holds for people affected by CMN and NCM.
 
12:00-1:00 pm
Lunch
Mahogany Foyer for serving; Mahogany V, VI, and VII for seating
 
1:00 pm
Conference Recap Panel - Q&A for any and all
Mahogany V, VI, and VII
All hands on deck for a wrap up of our conference, with a Q&A session, complete with live interactive phone app, so you can tie up your own loose ends and help us help you best!
 
2:00-5:00 pm
Makeup/Hair Session
TBA
 
2:30-5:00 pm
Physician Consultations
Dr. Bruce Bauer, Dr. Sven Krengel
Sienna I and II
You can schedule a 10 minute appointment after you register to consult with a dermatologist, a surgeon, and a neurologist (Note that the neurologist is only available Thursday).
 
2:30-3:00 pm
Kids and Teens return from Movie/Mall day
TBA
 
3:00-5:00 pm
Talent Show Rehearsal
TBA
 
3:30 pm
Teen Suite
5301
 
6:00 pm-11:00 pm
Evening Activities (Silent Auction, Talent Show, Banquet, Dance)
Dr. Sven Krengel or Mark Beckwith with Keynote
Mahogany V, VI, and VII
Join us for our legendary closing night party!
 

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